Santa’s little helpers!
Have a very Merry Christmas
and a Happy New Year!
17 Dec
“Write out your boundaries while your son is here,” the hospital nurse suggested to me over the phone. “Write it out –what you are and are not willing to do.”
I remembered the conversation I had with this nurse less than two months ago when he suggested that I hand over some of the care giving responsibilities I’ve taken on.
He didn’t say to whom I should hand any of them over to and so far nobody has volunteered nor do I know of anyone who can relieve me, so there.
I have boundaries. I told him my son doesn’t care about his life and with genuine sincerity he said he completely agreed.
How is a mother supposed to handle this… knowledge? Just this one part of a longstanding stressful and heart breaking situation is as hard as anything I’ve ever felt. To think that it is the truth deeply disturbs me. To think that my son doesn’t care about his life puts me into a hypnotic state of grief.
Everything I’ve ever learned or believed or know is not applicable to the way I feel.
Boundaries mean nothing. Lists mean nothing. Text book ideas and ideals mean nothing.
The only thing that matters to me now is my son and his life.
Statistics, treatment models, my son’s history, “the highest level of mental health care available,” which my son has in an ACT team and as the nurse added during our conversation today, “people are waiting three to six months to get services from an ACT team,” –none of this is applicable to the way I feel right now.
I’m unhappy with what many people are seeking and waiting for.
Part of the problem is that my being dissatisfied with the services the ACT team is in reality providing for my son rocks a boat that is barely staying afloat.
“The ACT teams are overloaded with too many people and not enough resources,” the nurse said right after he told me about how many people wants and needs this service. I’m well aware of the state of affairs within the mental health system. They are not good at all. “They don’t have the resources to see all of their clients, (a.k.a. consumers). Some of the people just don’t get seen.”
My son is one of those clients.
“Your son is difficult,” he said. I’ve heard this several times.
His teachers said he was difficult throughout his school years because he talked too much. The creative and interested teachers loved him. The ones who found ways to make school work for him, which was hands-on-learning, discovered that my son was not only bright, but also quite capable of being a, “good student.”
“The ACT team is difficult!” I said with strong conviction.
I like the nurse. He has taken very good care of my son many times now. I respect him and now, I think I need to be taken as seriously as anyone else involved in my son’s health care.
“I need you to hear me,” I told him. “You guys have to listen to me this time. Hear what I am telling you. The ACT team is not providing these services to my son. They have many good and very valid reasons, but I cannot accept them as an excuse not to see him.”
He said he would definitely pass on my concerns to the doctors and I know he will. I know they will call me just like they always do. They really are good doctors, but something happens in route from our conversations about resources and ideas as to what might help my son live independently in a community –to the day my son is discharged.
Somehow what is said doesn’t make it to a written document and he comes out of the hospital with the same treatment plan that he went in with.
The nurse has told me before how much he likes my son. “I find him fascinating when he can communicate,” he told me not long ago. Today he said my son is cognitively slower than he has seen him before. I realize that, which is why he’s in the hospital again. I’m very worried about my son.
The nurse also reminded me that he thinks my son is a really good guy. Everyone who knows my son says this about him. Most people say he’s sweet. That’s the word I hear most when people talk about him. People have said that about him since he was a little boy.
He has this kindness, this sort of giving unconditional loving way about him, but when he is sick, well… I’m lost for words.
My son is lost. He is truly lost in this world and I guess, so am I.
They say he has schizophrenia and he does have the symptoms, but he’s never fit any mold within the diagnosis, even as precarious as that is.
I’ve always felt in my heart that the doctors should focus on addiction issues, at least once. I know you can’t force recovery from a substance addiction on any person and when that substance is causing symptoms of schizophrenia… well, I’m lost for words again.
Addiction joined with schizophrenia, or more accurately, the symptoms of schizophrenia, — is very hard to treat. “The addiction your son has and schizophrenia are each possibly the two worst diseases a person can have,” one medical doctor told me a few years ago when my son was struggling with substance abuse. “Your son faces both of these,” he added.
I wish the hospital would take the approach that some of my son’s school teachers took and give him a new chance. I wish they would just one time forget his past failures and look at the successes he’s had and say hey, you know, we think your life is worth a great deal. We want to help save it.
I wish just one time that they could for a little while stop thinking of how things don’t work, stop thinking inside the box, stop telling me things I learned when I was five years old and give a good college try towards developing a new plan.
I know this would take some time, but it’s a hospital. A teaching hospital. A teaching hospital with renowned doctors and bright residents who are still young enough to be idealistic, so why not teach them how to approach the most challenging patients? Why not teach them that they might can make a real difference in one family’s life with a little extra time thinking, communicating and reaching out to find resources in the community?
“He’s older now,” the nurse also added. I’m tired of hearing that too. It’s clear to me that younger patients get a bit more attention and time, I guess, because the doctors are more hopeful that they can do something. (Studies suggest that early intervention in schizophrenia leads to a better prognosis).
His age isn’t applicable to how I feel right now. His life is.
What am I willing, or not willing to do?
It’s possible that I’m willing to die trying to save my son.
Today the nurse said he would worry for me. That was a blessing.
Thank you for visiting my blog.
1 Dec
“Mother of the Year” is written on the front page of the little book my son made in elementary school. I’m pretty sure all the moms of the students in his class were elected. The year was 1993.
Today I was trying to find something on the bookshelf and came across the book, which is an entirely wonderful personal treasure.
The first page says he is happy that I was elected. Then he goes on to say why.
“The best thing about my mom is that she’s fun to be with and nice.”
The next question asks him what the most important thing his mother has taught him.
He wrote that I taught him to, “Stop wars and boms.” Boms, not bombs.
He drew a picture of me, holding my palm out with the word stop written beside my mouth in one of those little cartoon type clouds. There was another person with a gun and he wrote the word “okay” beside that person.
I guess in a child’s mind stopping war and bombs is that easy.
The next part was written in larger letters: “Don’t use Drugs!” He spelled that right.
The next page reminds me of how much energy I had. “Mother on the Move” he titled it. I scanned it but it’s almost twenty years old —

I love my little book.
My son and I had a great time in his childhood.
I actually could clean a house in ten minutes. I played with him all the time but I only played Lacrosse once. He must have thought I was pretty good.
22 Nov
A personal experience of living with persistent long-term pain
I’m aware of pain every moment. A kind of pain that without medication is absolutely unbearable. A kind of pain that is hard to describe. It’s persistent, invasive and all-encompassing. It isn’t only muscle or joint pain, but feels like every cell in my body hurts and is crying out pain. Sometimes I feel like I’m on fire from the inside out.
Sometimes breathing feels like I have broken ribs and knives are sticking in my heart and lungs. This kind of pain scares me. Doctors believe it’s the tissue around my chest cavity that causes this particular pain, which they say is due to fibromyalgia.
I live with pain that the doctors say may very well continue the rest of my life. I’m only forty-six. I have severe fibromyalgia and Chronic Fatigue Syndrome. I also have other conditions that cause pain, but in comparison are easily managed.
I’ve lived with severe pain every day for about seven years. I’ve lived with intermittent pain from various conditions throughout my life, but fibromyalgia pain is the worst, both because of the intensity and chronicity.
I wake up every morning to pain, usually a moderate level, other times severe. I always have some level of pain. Sometimes the pain has been so severe that after taking enough pain medication to manage it, I’ve been left in a state of mental shock from the experience of intense widespread pain.
Sometimes I wake up crying. Other times it’s the first thing I do. I’ve cried myself to sleep plenty of nights. It’s not only the pain that I cry over, but also the ongoing battle to manage and accept it. I cry because pain intrudes upon every area of who I am and how I live my life. Most of the time crying helps. A good cry can be a positive experience.
Sometimes I have severe muscle spasms that take over my days, my nights and my life until they go away. Hurting that bad wears me out physically, mentally and emotionally. I can’t take muscle relaxers and narcotics don’t help spasms. Spasms are completely debilitating. They started a couple of years ago and each time they’ve been worse. With a neck spasm I can’t move my head and the pain is off the scales – emergency room pain.
Sometimes I think about what doesn’t hurt. My nose doesn’t usually hurt.
I don’t think I could live with the kind of pain I’ve experienced without medication. I once seriously thought that I would have to tell my family it was not humane to expect me to live anymore. I had decided during an excruciatingly painful camping trip that I could not take the kind of pain I was in and had been living with. I had sat up all night in my tent thinking about it.
I was with my two dogs on top of a beautiful mountain. I thought of my son and my mother. My family. I cried and sat there until sunrise, experiencing and feeling the enormous pain.
Fortunately, when I returned home I went to a doctor who began treating my pain. That was five years ago.
It may be that pain will drive you crazy after a while if you don’t have a way to treat it.
Pain and managing it is as much a part of me and my life as is anything and feels like it may be the most important part. I feel sure I’d go into shock and possibly have a heart-attack without pain medication. That scares me.
For the most part I’m able to manage pain with medication. I’m deeply grateful to have medication. I’m normally able to keep the level of pain around a three on a scale of one to ten when my medication is working well, which includes not being groggy. A level three or four is well-managed pain.
As a result of pain medication, I don’t have as many episodes as I used to of the kind of pain that feels like I can’t breathe or that I’ll have to go to the ER. Sometimes I miss a dose and fall asleep. That’s usually when I wake up with my entire body on fire and my chest cavity feeling like a mule kicked it.
I get scared of losing my doctor. I’m afraid I would get a new doctor who wouldn’t understand how severe my pain is, like five years ago when many doctors didn’t believe in fibromyalgia. They didn’t know what fibromyalgia was and would often blame it on psychological factors, such as stress or depression or they called it a, “trash-can diagnosis.”
I’ve tried nearly every non-narcotic pain reliever; including most of the antidepressants used to treat pain, along with the anti-seizure drugs Neurontin and Lyrica, but absolutely could not tolerate the side-effects. I eventually began treatment with a tried and true pain reliever, which treats the pain with relatively few side-effects.
Several months ago stress increased in my life and so did the pain. Any type of stress directly, and these days immediately, causes fibromyalgia pain to get worse.
I also went on another camping trip that physically set me back. I lifted logs to have a fire. Big heavy wonderful logs of Locust wood that I kept burning for four nights and five days right up ‘til the last few hours of packing to leave. I did plenty I shouldn’t have done. I hadn’t been camping since that one trip almost five years ago.
Being able to camp is something fibromyalgia has taken from me but evidently, I rebelled. It didn’t work out too well.
As a result of high levels of stress and the killer camping trip, I recently had to increase my dosage of pain medication. I thought the aftermath of pain from camping, which was almost four months ago would go away, but it never did.
Pain is depressing. Knowing that I might have to take pain medication for the rest of my life is scary. I get scared of getting old because I wonder how an older body will tolerate this pain or the side-effects of medications. I wonder how many times in my life I will have to increase the dose of pain medication. There are only so many times a person can do this in one lifetime. It’s all scary.
Personally one of the most difficult aspects of living with fibromyalgia pain is that it’s invisible. The same is true with medical fatigue. People will question and some will outright attack your character. Some people question your intelligence and your honesty, along with your motivation to seek out disability benefits when the pain and fatigue is severe.
Personally, it has been my blood relatives who have hurt me the most. I’m not sure what their intentions have been or what they gain from not believing that I have pain that requires treatment. They certainly don’t understand what Chronic Fatigue Syndrome entails.
I don’t know where the silver lining in the cloud is. I’d rather not have pain than to learn the lessons pain teaches, if that’s where the silver lining is.
Pain is humbling. It teaches that the human body is what it is –human.
Pain begs me to take better care of myself and to care more about myself.
I grew up hearing the saying, “What doesn’t kill you makes you stronger.” I wonder. I’m darn tired and worn out. I think I would be stronger if I hadn’t had ongoing experiences that felt like they might kill me.
I’m not too good at finding the silver lining in a cloud of pain.
I’m better at finding ways to cope. Little things that make me feel better like hanging out with my dogs. I love to rub the silky coat my young dog has. She’s the softest animal I’ve ever touched. She’s my tender heart.
My other dog is really my son’s dog but lives with me. He and I have always had a strong connection so we’re pretty close pals nowadays. I feel like his grandma. He’s a stoic fellow, but once in a while he’ll decide to give me one little kiss, just one and it’s always a surprise, like when I come home after having been out for a while.
My dogs give me joy and really do comfort my heart when all else seems lost or out of control. Dogs rule. They never argue and certainly never are they mean, at least mine aren’t. Dogs love you unconditionally, as long as you feed them, so that’s pretty cool with me.
Intentionally experiencing gratitude helps me ease anxiety or depression.
I think about the basic necessities in life –shelter, clothing, food, and sometimes little luxuries too. I think about things I’m grateful for because it actually does make a little difference in the way I feel. Some days it makes a huge difference.
As I write, the worst part of chronic pain is that it hurts today and I know it will tomorrow. The best part of having to live with chronic pain is that I have access to good medical care and medication to treat it.
Maybe one day I won’t have such severe pain. Maybe one day I won’t have fibromyalgia. Maybe I’ll discover new or different ways of treatment that works. One can hope because anything is possible. Well, most anything.
13 Nov

Peace of Home
The car was parked unusually close to my apartment. It was foggy and I didn’t recognize the passengers. I had to take my dogs out. I usually take both dogs, but I only took one this time. Maybe I was subconsciously preparing for the fight or flight response. I surely can’t respond with two big strong dogs pulling on me.
They were still sitting in the car when I came back to get my other dog. I said hello and the young woman in the driver’s seat returned my greeting. The subject of my neighbor quickly came up. He’s been harassing me for two months.
I thought she was being nice but then she cursed. I asked her to repeat herself. She verbally insulted me.
I have a rebellious nature that doesn’t always serve me well. I responded, but not by taking flight, which I should have done. I told her what I thought of my neighbor and that’s when he got out of the car.
He had a strange hat on and didn’t look like himself. She got out right after he did. He was clearly more intoxicated than I’d ever seen him, which must have taken an incredible amount of alcohol. He walked around the car towards me. He began his attack with a vulgar one-man show.
I was stunned but not too surprised by my neighbor’s behavior. It was a clear view of what I had felt during the times I had tried interacting with him. There had been a constant current of contempt seeping from his pores and he reveled in it like the insects in the sticky sweet sap from the wounded oak tree in my yard this past summer.
Being around him each time had left me raw and open, as if like the oak, something had struck a part of my foundation.
I made brief eye contact with the young woman. We had both stood silently while he acted out.
“Why don’t you try talking to him?” she asked me.
Her remark actually surprised me more than the neighbor’s behavior had.
“You see the kind of person he is?” I asked her. Obviously she didn’t.
“He’s really a good guy,” she said.
I guess she’s an optimist. Maybe she believes she has magic powers that will reveal this “good guy.”
His behavior over the past two months had led to eviction papers but he blamed me.
I guess I was being the optimist too because I thought if I asked him one more time to be quiet, especially in front of a woman he wanted to impress, that maybe he would listen. I was wrong.
“Why don’t you just leave me alone? I need sleep. I have…’’ I was going to say fibromyalgia, but he interrupted and began an outlandish verbal bashing.
“Oh and what do you say?” he shouted gloriously. “You say you have fii bro my algia! And what does fii bro my algia mean! That you hurrt!” He drew out the words fibromyalgia and hurt with great scorn.
He shouted fibromyalgia several more times. Amazingly he pronounced it correctly, but then he had told me several times about having been the smartest student in his high school English department. I’d found this curious because he reminded me of it every time I mentioned my writing. It seemed like he needed to always make it understood between us that he was smarter and better than me.
This is all much clearer to me now. Now that it’s all over and I can hear myself think again. For a while, all I heard every day and night was him.
He looked up at the sky continuing to shout out, “Oh I hurt! I hurt! I hurt!”
“Oh! Oh! Oh!” he kept on. He started physically mocking a person in pain by holding his body in ways to act like he was hurting. He included sexual innuendos while he was carrying on. It was a crude and ugly scene.
I can’t say why I stood there witnessing this behavior as long as I did, although I think it only lasted a short time. Responding to a sudden outburst of verbal abuse and being bullied like I was isn’t something I’m well practiced at doing.
“You’re a c**t,” he said. There it was. Hatred that I knew was there. I’m not sure if this surprised me or not. My memory of the event is like one moment in time. I remember more how I felt afterward than I do about when it was happening.
He briefly paced around in a small circle, obviously spewing with anger. He called me that name again. His friend looked a little ashamed, but she didn’t interrupt him.
I wondered how could she be okay with what we both saw. I failed to remember that she’s looking beyond his behavior at some fairy tale in the sky where he’s that, “good guy.”
“I work every day,” I said. I knew nothing I could say would mean anything to him, drunk or sober, but I’d said it anyway.
“Oh yeah, and what do you do! You cry the fibromyalgia blues! You sit home on you’re a** and cry those fibromyalgia blues, and oh how it hurts.” He tried to sing but was way too intoxicated. “I hurt, I hurt, oh I hurt,” he shouted, still looking at the sky. I don’t know why I so clearly remember him looking at the sky while he ranted and raged.
I’ve never cried any fibromyalgia blues to that guy. I did cry twice around him while attempting a friendship, but my tears had nothing to do with fibromyalgia. He was by far one of the rudest people I’ve ever been around and twice he insulted me in ways that caused me to eventually stop speaking to him. The few times I visited him felt like I had entered his personal war zone. Like he took a break from shooting arrows in his backyard and invited me over for some easy shots.
He continued with his drunken spew of contempt standing there in front of my porch. “You sit and cry how you hurt so you can get a check!” He emphasized the word check with a high note. Then of course he mentioned tax dollars.
Some people who claim patriotism don’t seem interested in the big picture of what helps shape our country into a place of opportunity and freedom — for every citizen.
In America we can better our lives, all of us, not just the able-bodied working folks. We can be anything we want to be. We strive to make sure that every child receives an education. We have social aid and many government programs to help needy children, and their families. We also help our disabled and elderly citizens. At least, those are American ideals.
People who don’t understand disability unless there is a wheelchair or a death-bed in sight can be cruel, like my neighbor. Some people will automatically assume a person without these visible affirmations of a handicap or illness is a fraud.
I continued trying to defend myself, which was an odd experience. I didn’t much care what this neighbor thinks of me. The words coming out of my mouth were like dampened cries from another place.
“I paid taxes.” I said. I knew it would only make him madder so again, the rebel in me most likely wasn’t serving my best interests, which is ultimately to have peace in my life. Obviously this means walking away from certain people or situations.
“Yeah. I’m sure they took a little out of your check,” he stammered.
“You are nothing,” he said. He stomped out his cigarette on the ground. “Nothing,” he repeated.
I remember this part clearly. Finally, he began walking away.
“I’m not nothing,” I said quietly. I almost cried but stopped myself. I looked into the young woman’s eyes again wondering, I guess, what she thought of her friend.
“I know that,” she said. She didn’t look pleased about her friend’s behavior, but she was looking for the sunny side of a burnt fried egg.
“You ain’t nothing,” he stopped to say once more before going inside his apartment.
“I’m better than you,” I said calmly, although that response surprised me.
“Ohhh yeah! Oh you are sooo good aren’t you!”
“Yes. I am.” I said. “You’ll be leaving soon,” I added. I shut my door.
That wasn’t his last performance but he’s gone now. It was a long two months.
The short-lived relationship I had with this person was an eye-opening experience for me. I thought I’d be able to spot a narcissist anywhere and easily.
Spotting one and ducking one are different skills.
I don’t know how narcissistic my former neighbor is, but he sure had a mighty large dose of himself. Arrogance and a sense of superiority over most of humanity were traits he proudly displayed. I didn’t know what to think. One day I asked him why he invited me over if he didn’t like anything I ever said and put me down all the time. He said I took things wrong, adding that his friends were all fine with his ways.
I guess there are many reasons a person criticizes others, particularly when it is done with great passion.
“What you see is what you get,” I remember saying to my neighbor months ago.
I finally decided that people who spend a lot of time hiding think everyone else is doing it too, but that’s just a personal theory.
From now on, I’m going to follow Leslie’s turn on this phrase, “What I see is what you get.” which she talks about in a recent blog post on malignant narcissists.
I forgot to keep the light in the watchtower glowing. I forgot that when people prove they are mean and rude to get away from them if I can, instead of trying to figure out if I imagined them being mean and rude. I forgot again to listen to myself. I keep doing that, but then forgetting does remind me to remember.
Thank you for visiting my blog.
This post represents several things to me personally, the best of which, I guess, is what it was like being bullied, although I didn’t write about the aftermath of that evening. It was as hard or harder than standing there witnessing my neighbor’s abuse.
It’s also an extreme example of stigma and disbelief around invisible illness. Although this person was intoxicated, I’ve had the stones thrown at me for looking fine and receiving disability benefits.
It’s about learning to walk away, right away, from people who behave destructively, especially when I am the target. As with most of my posts, it seems to be about listening to myself, or not, depending on how you look at it. I prefer to believe that I’ll eventually get wise(r?).
Also, my friend CJ, who has a great blog about living with fibromyalgia, has repeatedly encouraged me to keep on writing. Write anything she said. In that respect, this post speaks to my rather frequent unfortunate entanglements.
With all that said, I’m happy to have my personal space back, my peace of home and am rather looking forward to the rest of this beautiful season.
Peace
17 Oct
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IMAGE CREDIT: LESLIE SIGAL JAVOREK
Have you ever had a day where your body should have given out but it didn’t? A day when you were amazed that you could stand up, much less walk a mile or more, but you did it? A day when your tasks ahead weighed more than the world yet you couldn’t quit? A day when by night fall you finally looked at your phone contacts, your friends or maybe family, but you realized that you had to go at it alone?
I couldn’t remember what time I had gotten up that morning. But then I wasn’t sure if I had gone to bed the night before. I had slept, but when and where I wondered. On my sofa? In my guest room? It didn’t matter. I had a million things on my mind at once.
Finding a parking space at the hospital right away was a good thing, even though it irritated me that I had to endure the enthusiastic folks we share our hospital parking lot with for certain events. I wasn’t in any mood for celebrating. Plus, anything had potential in irritating me. I was keeping up with any good things and not having to walk half a mile to the elevator was one good thing.
I had stopped at the ATM on my way but was too tired to get out of my car. Somehow walking from the parking deck to the hospital seemed easier than taking the time to get some cash to pay for Valet parking. I was not thinking clearly.
I forgot the number of my parking space but it was too late to turn back. I knew what level of the deck I was on. That was good enough. On to the other million-minus-one thoughts taking over my mind.
“I love the way you walk,” someone I once knew used to say to me. “You walk strong and tall with confidence.”
Oddly, I remembered this as I was passing people while crossing the walking bridge. I slowed down and took shorter steps.
I began thinking about how severely fatigued I was. It was more than fatigue. I kept spacing out. Earlier that day when I was feeding the dogs I had already measured their food and put it in their bowls, yet I stood there, staring off into space with their full bowls on the counter. Both dogs stood by me waiting and watching, obviously wondering what was up with their human. Finally, our older dog, who has a deep bark and only speaks one time when he has something to say gave one strong, “Rrruuuff!”
The sound brought me back to the moment. I put their bowls on the floor. I thanked my dog. He had done his job. The perfect therapy dog and he hasn’t even been trained.
Walking slowly across the bridge, the past 48 hours of stress rolled around in my mind. I was hungry and tired, but I was still going. I had a bag of clothes for my son on one shoulder and a leather purse on the other. They felt like they weighed a ton, but they didn’t.
I told myself I didn’t need to walk strong and tall. I didn’t need to be confident. I decided to walk the way I felt.
There was a peaceful feeling in accepting the physical weakness. I felt confidence in not hiding.
The cafe was at the entrance I chose, but time wasn’t on my side. I continued on. The hospital’s walkway to the elevator seemed more daunting than ever before.
Acutely aware of pain and fatigue, I started to walk how I felt. Another person I know used to say, “You gotta walk through it man. Whatever it is, you gotta walk through it.”
A hospital is a fine place to collapse I thought. I might walk through it, but I wasn’t sure that I would make it to my destination.
Reaching the elevator I noticed some wonderful photographs on the wall. I was captured for a moment and then I saw the coffee shop sign. Slowly I moved on, carrying my bags and my body. The pastries caught my eye.
“Can I help with you anything Mam?”
I heard something in her voice. Was she responding to what I was feeling I wondered or was it the striking red streaks in my eyes? I wasn’t indulging in my feelings or I would have fallen down in a puddle of tears. I desperately wanted a friend. If ever I needed a shoulder to lean on, this was one of those times.
“I’m going to look at your pastries,” I said to the woman in the coffee shop, but she looked concerned, which she was.
She walked around to my side of the counter bringing me a glass of water. My eyes were so tired I couldn’t read the labels on the drinks. I chose a plastic juice for my son and a bottled soda for myself. I looked at the pastries, but I didn’t want anything.
“Do you want some real food or a snack?” the woman asked me. “We have these egg and sausage croissants and…” I forgot what else she offered. Nothing sounded good. I was trying to keep myself composed. “What about peanut butter and jelly?” she continued.
“These are the best peanut butter and jelly sandwiches I’ve ever had,” she said. “They have peanut butter on both sides and jelly in the middle. I’m serious. They’re the best.”
“Yes. I like peanut butter. I’ll take one of those,” I said. My words were barely audible. My voice shook. My hands shook. I slowly put my bags on the floor and paid the bill. I was able to smile.
I began to feel a little better. This stranger’s genuine concern warmed my spirit, lifting some the weight of the world I feel on my soul.
I remembered the last time my son was in the hospital. I had a shoulder to lean on that time. He had driven to the hospital as soon as he could when I told him what was happening. He waited with me in the emergency room lobby for several hours. He bought me snacks. He held my hand. I felt strong having someone there for me, while I was there for my son. Times like this was why I believed the man who came for me truly loved me. I was wrong.
As I crossed a walking bridge on my way to the elevator, I saw my shadow. Strangely, it gave me strength. I remembered a part of who I am. I remembered that I am strong. I felt stronger alone with my shadow, than I had with a person who was only pretending to be my friend.
I decided to refuse to be defeated by the day and instead, embrace the desperate way I felt inside.
My visit with my son was not so great. He didn’t feel like talking. There were several people around. Two women were sitting close by us. One talked too much. I wanted to talk to my son but he didn’t feel like it. The other woman stared at me the entire time. I felt like she was looking into my soul. She told me her name. I said hi and we shook hands. She kept on staring at me.
“Is he your husband?” she finally asked me.
“No. He’s my son,” I told her.
I used to feel complimented when people said I looked like my son’s sister, but now, I really only want to look like his mother.
“You look sad,” the young woman added.
“Yes,” I responded. “I’m sad.”
Thank you for visiting Dogkisses’s blog.
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