Overwhelmed and Confused

directions in the south

A little help finding our way

Life is kicking me around.  My attempts to rest have been continuously and consistently interrupted.  I wish very much I could write about the experiences I’m having.  My difficulty lies not in what to say, but what not to say.

I feel like so many things have happened over the past decade that it’s all jumbled up in my mind now.  I used to be good at dates and remembering events.

I feel upset most of the time.  My guts are torn up.  My heart is heavy.

My responsibilities have become so completely overwhelming that my brain feels like a computer barely working and about to crash.

For the first time in my life, I don’t quite trust myself.  I don’t know how I’m going to respond to people.  I feel like a volcano and many little things are shaking me up.  I feel emotionally raw.  I feel a bit defeated.

I recently got angry at a woman in an elevator for pushing the button to go down after I’d waited on three that were going up.  I was immediately ashamed of how I reacted.  I apologized.  She responded by saying, “I was going to help you Mam.”

How did she know I needed help I wondered.  I didn’t feel that I deserved her kindness.   The elevator doors opened and even though it wasn’t her floor,  she stepped out to help me find my way.  Two nurses were walking by and when they saw me they stopped.

“Do you need some help?” they asked me.

I wondered why they were all being so nice.  I had dressed decently and fixed my hair normally.  My eyes had been terribly red from sleep loss and pretty consistent crying spells, but I had used eye drops so what was it that they saw?  I hoped they couldn’t see how desperate I felt inside because I was afraid someone would try to put me in a hospital.

I got lost on my way there.  I called the clinic and the receptionist treated me much like these women in the hallway had.

She gave me good directions and didn’t want to let me off the phone.

“It’s okay,” she said once more before ending the call.  “We’ve told the doctor you got lost, so don’t worry.”

Getting lost on my way and then in the hospital too had more than frustrated me.  I felt scared that perhaps I’ve had a stroke and don’t know it.

I realized that I hadn’t eaten and it was about 2pm.  I told the woman who registered me that I was going to be sick, which was the truth.  I was looking for a trash can just in case.  She gave me a grape juice and a graham cracker.

Checking into the clinic the desk clerk asked me if I remembered where I parked.  “Yes,” I answered.  “C.”  They all looked worried.  I realized then that each level on the parking deck has a C and I had no clue what level I had parked on.

I felt as disoriented as I had the time my son and I drove to South Dakota from North Carolina.  Illinois and Iowa made me feel strange inside my head because I had lost all sense of direction.  I realized I don’t like being in the middle of our country.  I like it on the edges.  At least I know where the ocean is.

purTY purTY purTY

Pretty red bird, he sings it every day!

Photo by Virginia Sanderson via Flickr

Every day for the past few weeks I’ve heard the Cardinal call,  “PurTY, PurTY,  PurTY.”  What a nice thing for a bird to say!

I’ve always especially loved Cardinals and the male is certainly an eye-catcher,  just as nature intended.

I wonder what the very handsome guy in the above image is thinking, but then I also wonder if birds can think.

I’m too tired to research this question in-depth, but I came across a wonderful article about a Parrot, Alex, who sadly died in 2007, but left with us interesting questions about animal intelligence that I find fascinating.

There may be more to a “birdbrain” than we thought.  The article about Alex is from 1999, but I imagine there remains, “a highly emotional debate about whether thought is solely the domain of humans, or whether it can exist in other animals.”

“Alex can think.  His actions are not just an instinctive response, –but rather a result of reasoning and choice.”  (Dr. Irene Pepperberg, A Thinking Bird or just another Birdbrain).

I’ve always wondered about humans being the most intelligent species and the older I get, the more I wonder.

Living with a chronic illness has a way of putting you in touch with being human.  Living with persistent pain and/or illness is humbling.  Strangely, this experience of being so damn human gives me a sense of connection with all living creatures.

I guess when I think of the pain and fatigue I live with I remember the ticks.  They are so small and relatively low on the food chain, but one bite from the wrong one at the wrong time can change your life, or worse.

There is a sense of oneness in the awareness that these little vectors can transmit disease and that a resulting illness can fall upon any person.  We are all alike in one way.  Blood runs through our veins and a beating heart keeps us alive.

I remember the day I found the baby deer tick on me.  It was in the afternoon and was a beautiful day outside.  I remember falling to the ground in weakness, while walking to my car.  Suddenly it felt like someone had grabbed my throat and was choking me.  My joints protruded for months.  For several weeks, I lost almost complete use of my hand and eventually my arm too.

I remember lying in bed looking out of the window thinking how I’m not any stronger than those ticks.  We are the same in one way you look at it.  We each have our place on this planet.

A few weeks ago, the deep joint pain like I had after the deer tick bite in 2003 reappeared.  This scared me.

I went to the doctor who tested me for autoimmune diseases.  I didn’t think to get tested for any of the tick-borne illnesses.  I’ve seen a few crawling on me this year, but none of them were attached.

“Positive,” one of my lab reports reads.  I received them in an email without an explanation from my doctor.  A lab report I can’t understand, but I do know the word positive.

I called the nurse,  “What am I positive for?” I asked her.

“Something arthritic,” she answered.

I know the test is for autoimmune diseases, but they have to do further testing to know which one.  It could be Lupus or RA and for all I know it could be Chronic Fatigue Syndrome or something else!

My doctor still hasn’t sent me a note, explained anything or asked for a follow-up.  Modern times I guess.

The referring nurse called to say the Rheumatologists can see me in August.  This is April.  Sigh…

We have many fine Rhuematologists here, but they won’t see me because I have insurance for poor people and doctors don’t like it because they don’t get paid as much for their services.  I also have Medicare, but because I have Medicaid, they won’t see me.  The only ones who will take my insurance are the teaching clinics at the hospitals, which is a lot better than going to the public health department like I had to when I lived in the mountains.  That was altogether horrible.

Still, it isn’t very cool that I have a positive test for an autoimmune disease, which was taken because of joint pain and a worsening of fatigue and not be able to know what exactly I tested positive for.  I would at least like advice or counseling, since knowing me, I probably wouldn’t use whatever medication they suggested.  I can’t take medication for arthritis.  They all make me sick.  I can’t take most medications without getting sick.  However, I’d still like to know where I stand and what my body is battling.

I’ve suspected Lupus before and so have a few doctors I’ve seen, but you have to test for this disease when it’s active for the results to show positive.

I’m very tired and life isn’t slowing down for me.  It’s hard to keep up my obligations, some of which are difficult when I’m feeling well.

I keep thinking things will get better.  They’ve been bad before and they got better.

A cabin in the mountains near the hot springs is what I fantasize about.  Taking my dogs, a few good novels and waking up for a month or so, only to walk over to sit in the natural springs and enjoy a Swedish massage afterwards.

For now, I take comfort in nature.  I listen when the birds sing.  I hear that Cardinal.  “PurTY, PurTY, PurTY.”  He is so nice!

Thank you for visiting Dogkisses’s blog.  Please feel free to leave your thoughts.  Emails are never published.

Forest Food Web via mdlk12.org

Related Articles

Weekly Photo Challenge ~Lines in Carolina

The Fence Lines

do you think the grass is greener on the other side of the fence?

The Fence Lines… A little closer.

The other side of the fence...

 Carolina country lines

Lines in Carolina

Carolina land lines

Carolina country lines

Peace in Nature

A poem by Wendell Berry:

The Peace Of Wild Things

When despair for the world grows in me
and I wake in the night at the least sound
in fear of what my life
and my childrens lives may be

I go and lie down where the wood drake rests
in his beauty on the water
and the great heron feed

I come into the peace of wild things
who do not tax their lives with forethought of grief
I come into the presence of still water
and I feel above me the day-blind stars
waiting with their light

for a time I rest in the grace of the world
and am free.

The music in the video is called Hawk Circle, played by George Winston.

Thank You for visiting Dogkisses’s blog!

 

In all the fog, I write…

Thunder beings and Brain Fog

The Thunder Beings have roared and a hard rain is falling.  I sure am glad to be home.  I like being home with my dogs during a storm.  I also like knowing that as I write, my family are in safe places.   Shortly, I’ll be snuggling up with my furry family to watch a movie.  I can’t tell you which movie because I forgot the name of it, which brings me to the heart of this blog post.

I basically wanted to say hello to my blogging friends and readers.

I miss my blog.  I especially miss being able to think clearly enough to express myself through writing.

Normally, I can sit down and write ten pages about something and even though it might need editing, I’m able to communicate what is on my mind.  Lately, this is not the case.  I have a lot on my mind, much of which I’d like to write about in this blog, but I am simply too tired.   I’m also in a lot of pain.

I began this post last night and wanted to publish it while the Thunder Beings were here.  I finished it, which amazed me, but I couldn’t keep enough mental energy to tag it or put it in a category.

The Thunder Beings came back tonight just as I sat down in another attempt to write something that makes sense.  Another hard rain fell.

I don’t know who came up with the term, “brain fog,” but the condition is well understood by those of us who have Chronic Fatigue Syndrome and/or fibromyalgia.

Brain fog attempts to describe a medical mental fatigue that robs us of our normal cognitive skills and abilities.  For the past six months I’ve battled this fog consistently.  Normally, the condition isn’t this persistent and instead comes and goes, giving me times when I can still think.

Writing is hard when this is happening and I usually don’t even try.  I forget my words and have to use the dictionary constantly.  I can’t spell words I’ve spelled since elementary school.  My sentences are choppy and things aren’t flowing.

Brain fog can make a person nearly incapable of verbal responses.  It can have an effect on a person’s speech.  Words might get disordered in a sentence or we use a word that sounds like the one we are intending to say.

I know the words I’m looking for when I lose them.  I can describe the meaning, sometimes the sound or the first letter.  Written words I’ve known since I was a child look unfamiliar.

Mostly I’m tired and sleepy, but I can’t stay asleep long enough for my body to restore itself.  I’m half awake and half asleep.  It isn’t a good place to act from.

My body is as tired as my brain is.  Moving around is hard.  Bending over takes tremendous energy.  I can’t keep up with my chores and that stresses me out.

I’ve missed deadlines.  Many of my obligations in life are compromised.  I don’t get to go visit my family.  I’m also getting a bit confused and my short-term memory is shot.

The fatigue alone is completely overwhelming.  Add to that widespread ongoing pain in the nerves, muscles and deep in the bones and it is one mighty difficult condition!

Life goes on though.  It doesn’t stop for me to be sick or it seems, for me to get proper rest, but then maybe I don’t know how to rest.  Maybe I forgot.

Much of the time, I feel stressed.

I have an adult son, whom I love with all my heart.  He has challenges that I haven’t learned how to accept in a way that doesn’t cause me grief and anxiety.  I believe that accepting things the way they are is the best place to start when you want to change something, but honestly, I don’t feel like I’m doing a good job at this with mine or my son’s circumstances.

Being unwell causes me to feel like I’m failing my son, the other members in my family, including my dogs and a community.  I can’t say that I have the latter, but if I did belong to a community, where would I fit in I wonder.

When I have brain fog, I don’t feel like I have anything to offer.  I do love my family and friends, so I guess love is the one thing I still have to give, no matter what.

I worry about what is happening in this country.  The cuts in our system are scary to me on a personal level.

Being a disabled American makes me feel like a misfit.  The taxpayer’s enemy.  I represent to some Americans the reason our country is in such bad shape.  Somebody, “living for free.”  A flaw in an otherwise well-functioning system.

The doctor wonders what is depressing me!

Chronic illness impacts my view of myself and the world.  It’s a view that’s been filtered through pain, mental fog and bewildering fatigue, along with a very long decade of chronic stress.

I have the dogs to keep things real.  Plus, of course, I love them and think they’re the greatest little creatures to have ever lived on the planet!

One of my dogs had to go out a little while ago.  I was lying on the sofa.  He came over and sat there beside me, patiently waiting.

I felt like a million pounds of sand was lying on top of my body and it hurt.  After about eight minutes, which seemed like forever, I got up.

Putting his collar on him, I just happened to look at the sofa where I had tried to rest.  I saw the pain.  I saw the fatigue.

I didn’t want to ever lie on that sofa again.  I hurt when I lie down.  For a moment, the difference between the way I felt standing and the way I had felt lying down was somewhat mentally shocking.

I feel some better when I get up, but it isn’t long before I’m completely exhausted and must lie down again.

My dogs continue to be good for my health.  They keep me from never getting off that sofa.  They need me and I need them.

They took me outside after the rain stopped tonight.  I needed a short little walk and some fresh air.  They always know this.

Thanks for visiting Dogkisses’s blog.

Image via drburtoni’s photostream, Flickr.

Eight legs walkin’

we love mom

Eight legs ‘a walkin’

Walkin’ round my home.

All just so,

I don’t walk alone.


Eight legs ‘a walkin’

Walkin’ round my home.

Oh, don’t you know?

I love you so!


My sweet little Ruthie,

You hold your head high,

Your spirit made strong,

Furry tail up,

wagging all the time!

Now that you know,

I love you so!


My sweet little Ruthie,

I remember you then.

Your head was down,

Furry tail drawn in.


Sweet little Ruthie,

I remember you then.

Jumping in my car,

Never looking back.

How did you know?

We would love each other so?

I know you were kissed,

From the angel I missed.

She waited ’til she knew,

I found you.


Every moment since,

You’ve celebrated your life.

Yes!

Hallelujah!!!


Your head is in the air,

high and mighty strong!

You are a big girl now!

So you be certain,

I am very proud!


Tiny…

He puts his large head,

so soft…

gently on my leg.

He knows where it hurts.

His big deep brown eyes,

gazing into mine.

Mine with fears,

loneliness and tears.


Oh, how I love YOU!

This is what Tiny tells.

He always knows when to tell,

Oh yes, he knows!

I’m amazed every time,

He lays his head next to mine.


He hears my heart call,

his little legs start walkin’

lovin’ is a dog’s law.

Tiny knows…

He knows when it’s time to tell.


Right when I was thinking,

It was too late for me,

Tiny comes closer.

Oh, can’t you see?

Oh, don’t you know?

We do love you so?


Yes, I say,

I can see!

I can surely see!

 

My sweet little Ruthie,

My dear boy Tiny,

I have not forgotten.

I hope you know,

I do love you so!


I don’t understand,

why took the two-legged left.

Oh no,

I don’t understand.


I cry and wonder why.

Why does it have to be this way?

Every silent day,

Every silent moment,

I wonder why.


I always end the silence,

Saying Yes,

I remember!

I remember that you’re here.

Yes,

I remember!


Eight legs ‘a walkin’

Walkin’ round my home

All just so,

I don’t have to walk alone.


I don’t know how to make it,

I don’t know what to do.

I only know,

I sure do love you.


I thank Lord Jesus.

I thank Great Spirit.

Praise Jah!

For the Dogs!


Thank You for the Dogs!!!

These dogs You have given me.


Love renews my spirit,

moving through my body,

healing my wounds.


These dogs,

they keep saying,

We are eight legs ‘a walkin’

Walkin’ round this home,

All just so,

You never walk alone.

 

Yes!

Hallelujah!!!

These are my blessings,

These eight legs ‘a walkin’


I always know,

I don’t have to walk this road alone.

big hound dog eyes says I sure do love you

Dogs give...

In Memory of my sweet Free…

Perched on the wood,

Crow spoke.

You can’t walk this road alone.

Not anymore…

You can’t walk this road alone.

From Free,

Crow spoke.

Thank You Free!


Thank you for visiting Dogkisses’s blog.


Honoring our Earth Mother (from Dreamwalker’s blog)

With Sincere Gratitude to Sue Dreamwalker for her generosity in allowing me to share this post from her blog.


From Dreamwalker’s Sanctuary:  

A Special Goodnight for all Mothers.

 

By sending your thoughts out into the ethers, you send out your intent, and you draw to you that which you need, and that which will sustain you.

I send you all a special Goodnight, and wish all of you Mother’s Out their a Happy Mother’s Day on Sunday 3rd April here in the U.K.

I will let my daughters words speak for themselves..

Our Great Mother

Mother’s Day

On Sunday 3rd of April it is Mothering Sunday in the UK. On this day we will show our love, gratitude, appreciation and healing to our Mothers. It is also a day when we should show the same qualities and expression to our true Mother. Mother Earth. If we don’t share the same feelings for both then we have a problem.

For Mother Earth gives to us total unconditional love, to us her children, just like your own birth mother should do.

Let’s think about this for a moment. How often is our blessed Mother Earth overlooked and taken so much for granted, and yet she provides us with so so much.

Air to breathe, the food we eat, water to drink. Everything we need to sustain our life on this planet. Mother Earth needs your healing now; she is sick and has been overlooked for too long.

We have made her sick and it’s time we took responsibility for this, can you imagine making your own Mother ill by poisoning her, beating her. It sounds very harsh but this is the reality of the situation.

Mother Earth is moving into a more beautiful state of being just like we are and she will rid herself of everything that stops her from achieving this,just like what we are doing in our own lives.

Send her healing today and everyday, let everyday be Mother’s Day!! Send healing to our beautiful Mother’s!

Take a moment each day to be in gratitude for what Mother Earth provides us with, Feel it in your heart. The air we breathe, the water we drink, the plants and vegetables we grow and eat to sustain our life. The elements Earth, Air, Water and Fire for without these we couldn’t survive! The animals that teach us so many lessons and give us so much joy! The trees that offer us shelter, protection, healing and wisdom. The Great Sun for her warmth and light, and the Moon for its rhythms and cycles. The beautiful mountains and also our dear brothers and sisters sharing this special time here on Mother Earth…the list goes on and on!

Then send your love and healing to Mother Earth in which ever way suits you best. Reiki, Seichem, Spiritual Healing, Prayer, visualisation, meditation, drumming, chanting and singing again the list goes on and on! We are the co-creators of this planet so let’s get to it and help our Mother!

Please feel free to share this message

With lots of love and Blessings Julia XxX

If you are not familiar with Little Grandmother  check out her videos on youtube and visit her website www.littlegrandmother.net

Thank you again Dreamwalker for offering this as a gift.


A friend with paws

A lovely poem by a young girl who loves a dog

 Ruthie Mae

She’s as beautiful as a bay

She loves to play

She loves it when I tell her to sit and stay

She gets mad when I don’t say hey

She loves to drink lattes

She was born in May

She loves to run and walk on a beautiful day.

Golden fur like Autumn leaves

When we run together we feel the breeze

I’ll chase the dragonflies

She’ll chase the bees

She gives me her paw

when I’m on my knees

She gives me her paw

Then I know

She’ll be there with me through it all.

Ruthie Mae,

Ruthie Mae.

A lovely poem written by and offered as a gift from my sweet and dear friend about her relationship with and her love for my dog, sweet Ruthie. 

“She gives me her paw when I’m on my knees.  She gives me her paw, then I know she’ll be there with me through it all.”  –by a girl who loves a dog!

Image via Wikimedia Commons (File: Joshua Reynolds – A Young Girl and Her Dog.jpg)

Thanks for visiting Dogkisses’s blog!