“Rosa la Rouge” was her name.

by Henri de Toulouse-Lautrec (French, 1864-1901)

A-Montrouge Rosa la Rouge

I gazed into the small framed print for a few minutes wondering if I should spend money on something I didn’t need.   I was after all, at the thrift shop and had already chosen several items  from the art room.

I almost put the picture back, but I looked at it again.  I wondered what had drawn me to it.  There wasn’t anything that especially stood out to justify the purchase, albeit a modest one, except that I really liked it.  I decided that was enough.

As I write, over a year later, I remain captured by the woman in the picture.  

At Montrouge (Rosa La Rouge), by Henri de Toulouse-Lautrec.

Sometimes I take the picture down to take a closer look.  I want to understand what I feel when I look at Rosa.  

She’s mysterious and I wonder what she’s thinking.  I wonder where she is and where she’s going.  I wonder if she’s happy or content.  I think she has something on her mind.  More than that, I think she has a difficult life.  I’m rather delighted that this image evokes so many questions!

My sister came to visit me one day and remarked about the picture.  “She looks just like you,” she said.  “Exactly.”

I hadn’t thought about it, but oddly, I wasn’t especially surprised.  Looking again I saw a resemblance, but not as much as my sister saw.   It’s rather a feeling than her physical features that I relate to.

Rosa la Rouge was a French washerwoman; a laundress, which wasn’t an easy life.  They had a reputation of also being prostitutes.  Having learned that Rosa was likely a French prostitute evoked more curiosity about what I feel when I look at her portrait.

My first impression of Rosa made me think of a woman living the life of a poor share cropper’s wife.  I saw a woman trapped in a life of obligation.

Perhaps it is a certain loneliness in her that I see.   An alienation from the world of nine-to-fivers; the regular people who get up at the same time and go to the same place every day.  Regular people with regular jobs and regular relationships.

I imagine being a prostitute would call one to abandon, at least temporarily, a part of herself.  

So, I wonder about Rosa la Rouge.  What is it about her that intrigues me?

Is something lost to her?  A part of herself that she waits to meet again.

Is something lost to me, I wonder, when I see my reflection in Rosa’s image.

 

Henri de Toulouse-Lautrec (French, 1864-1901).

“Toulouse-Lautrec was drawn to Montmartre, an area of Paris famous for its bohemian lifestyle and for being the haunt of artists, writers, and philosophers.”

source: http://en.wikipedia.org/wiki/Henri_de_Toulouse-Lautrec

“Rosa la Rouge was a prostitute who appeared in many of Toulouse-Lautrec’s paintings.  Sadly, she is thought to be the source from which the artist contracted syphilis, a then-incurable disease which may have contributed to his early death at the age of 37.”

source: http://www.artcyclopedia.com/masterscans/l28.html

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She neglected her apples

a curious girl, an old lady and an apple treeOf course I’d been told about stealing and the Ten Commandments.  I had also been specifically instructed, perhaps too many times for my rebellious nature, not to take, I mean steal, apples from the old lady’s yard.

“She’s stingy and mean,” my mother would say.  “She would probably come out and hit you with a stick or something.  There’s no telling what she would do if she catches you in that yard!”

The woman’s house was the last house on the road and beside of it was the dirt road that was beside the, “sewer.”  She lived on what we called, “Sewer road.”

About twenty or thirty feet from the curve, where Sewer road went straight ahead and our road took a sharp right, her house was on the corner.

You could smell the odor and most of the children in the neighborhood wouldn’t play on that corner of the block, which is what our neighborhood was; one block in a small rural town.  I guess the old woman was glad the smell kept us away, but I was curious and had a bicycle.

I’m not sure what it was that made me want to take those apples.  I didn’t understand why she wouldn’t come outside, be nice and give a person an apple.

I’d ride my bike around the block and every time I passed her house I secretly hoped to get a glance at her.  Sometimes I’d see her raking leaves and I would slow down, but she wouldn’t even look at the road.

There was another woman who had an apple tree in our neighborhood.  She was younger, but was still old in my young mind.  She was married and lived closer to the main road than to Sewer road.  Her apple tree was right there at her front door.

The lady’s house down by the sewer sat further back into the woods, leaving her unattended apple tree to a curious girl like me.

I would put on one of my older sisters’ bra.  I could stuff up to three of four apples in each cup.

My friends would dare me.  They couldn’t believe I was so brave and at thirteen, this was pretty cool I thought.  Most of them wouldn’t even walk that way, because of the smell, but they were also scared of her.  Plus, I had one of the few bicycles in the neighborhood.  I often rode alone.

I was taught that the best apples were the ones that had already fallen, but not yet eaten by worms.  I was also told that picking from the ground was simply the right thing to do.  My dad’s folks said that leaving the good ones on the ground, and that meant ones without worms or with only one or two wormholes, was being wasteful.

The old woman’s tree was quite abundant.  I don’t think she ever even used her apples!   Wasn’t she being wasteful?

My friends and I did enjoy eating the apples.  I think that matters.

My mom said that the other woman was stingy too, but that if I knocked on her door and asked politely, that she might give me an apple.  So I did.  I never wore out my welcome, which was at best tentative.

“Yes, I guess you can have one, but take it from the ground and only one,” she would say.  “I’m going to be making jam soon.”

Well I knew that I would never taste her jam.

For some reason, I liked better the apples from the tree down by the sewer.  Both trees produced red and crispy apples.  I guess hers were better because I didn’t have to deal with her like I did with the other woman.  Neither of them were pleasant people.

We didn’t have much to do in the town I lived in.  My grandmother always said, “Idled hands are the Devil’s workshop.”  I guess she was right.

Much laughter occurred when my friends saw me returning, apples bobbing around on my flat chest.  Sometimes one in each pocket of my shorts.   I couldn’t see how that woman ever missed any of her neglected apples.

I guess I shouldn’t have taken, I mean stolen, those apples, but I did, and much fun was had.

Gotta have a bike!

Thanks for visiting Dogkisses’s blog!

Apple Trees via Wikimedia Commons

 

 

 

 

Love or Abuse?

c. 50

Ending an abusive relationship can be easier than dealing with the aftermath, which may include forgetting why you had to end it.

Abuse is abuse, but psychological abuse isn’t as easy to recognize as is a bruise or a cut to the flesh.

We’ve all heard the saying love hurts.  How much is it really supposed to hurt?  It shouldn’t hurt all the while you’re in a relationship.

Love is an elusive subject.  I imagine love can have many meanings and different shapes, but abuse is not love.

I loved a wonderful man, I thought.  I also loved the way I believed he loved me.

The man I loved was kind, compassionate, generous, funny, smart and told me every day he wanted to spend the rest of his life with me.

Unfortunately, I loved an illusion and an impostor.  I loved a character that was passionately and intelligently designed, especially for me.  I loved a man, who I honestly believe has Narcissistic Personality Disorder.

The man I loved created a character for me, mostly through what I now realize were constant interrogations.  He would sit by my window with me in the mornings where I liked having coffee.  He asked me questions about my life twenty years earlier.  Over and over he asked the same questions.  He disguised his questioning as an interest in getting to know, “everything about me,” which he called love.

How he created the character is a long story.  It was continuously being created in every moment we spent together.

The first day we were sexually intimate he began asking me about fantasies.  Had I ever had this one or that one and if I said no, he would ask had I ever at least considered certain ones he had mentioned.   He also wanted to know about every relationship I’d ever had as if we were in our early twenties or even teenagers.  He was in his early sixties, almost twenty years my senior.

He wanted to know all about my childhood.  Basically, he wanted to know everything I liked, disliked, desired or had ever desired so that he could create my perfect mate. 

There are reasons good and intelligent people fall for abusive and pathological personalities.  We don’t fall in love with a cruel person.  It’s the opposite.  Sometimes cruel people seek out kind people.  We fall for the kindness they pretend to have.  We fall for characteristics, such as a great sense of humor, what looks like compassion, an acknowledgment of our hard work in life.

In my case, the man I loved was wonderful until the first time I expressed my personal feelings about something other than being grateful to have such a terrific person like him. 

He became a cruel, deceiving, lewd, sarcastic and possibly, the most destructive, was that he became intensely revengeful.  The man felt rejected by me.  I would learn that this triggered what he called his, “childhood narcissistic injuries.”

He spent six months working hard to gain my love, admiration and respect.   I finally fell for him and this was the hardest part of ending the relationship.

When I finally told him that I trusted his love, I never again saw the man he had pretended to be.  It was as if the man I loved died and that’s exactly how it felt.

Instead of chocolate and roses, poetry books for lovers, and gifts he thought I would like, he began sending me emails clearly calculated in ways to leave me in the dark about what he was doing and stunned by descriptions of recent activities he described. 

I don’t know how long he thought I would hang in there, and I can’t believe I was in that relationship even one day, but hindsight is everything.

He started being cruel to me, finally sending me emails offering me, “whatever my price,” to be one of his nude models.  I never knew he had nude models.  He described their bodies. At first, I thought he was trying to make me jealous. He was, but he had a dark agenda. 

Eventually, he sent me an email the day after he’d come to support me while my mom was in an ER. A young nurse was working that night. I was having a severe episode of chronic fatigue syndrome. He sat up with me while we waited all night.

I hadn’t felt support in the areas of my life where I needed it. An older sibling wasn’t willing to help that night. She doesn’t believe Chronic Fatigue Syndrome is a real illness. Someone needed to be with my mom, but since I was the one who said she needed to go to the ER, which she did, then I was told that I had travel to that town, and stay with her until she was discharged. I did, but I felt alone and exhausted. His being there that night meant a lot to me.

The next day, I got an email from him. He told me he’d gotten the nurse’s phone number. Then he described them going to his new condo, the one that I’d never seen, and in detail, he wrote about being with the young woman in the shower. I suspected it was all a lie. I didn’t believe he could even get into those positions he had detailed, but it was a hard read no less.

I was truly sickened.

Not long afterwards, I received an email from him offering me all sorts of promises for the future, “if (I) could compartmentalize my feelings.” 

I blocked his emails after that day.

He was financially wealthy.  He tried using money and promises of financial security to manipulate me. He called his offers a good deeds in the name of charity and love.

This was not love.

There was pure malice in his offers.  He knew it would break my heart to hear him talk about his lust and sex with other women (even though I didn’t really believe him. Self doubt over my own intuition had been nurtured).  Telling me all about his new home and his, “wonderful new furniture,” while never inviting me there, was simply a way of hurting me.  And it worked.

I discovered that everything he had told me had been lies.  His lies were complex, complicated and detailed.

The entire time he maintained that he knew what love was, as if he were a master of the subject.  It was amazing.  He wrote demanding righteous long emails about what love and courtship meant.  I was stunned and for a little while, silenced.

I’d ask him what was going on. He maintained that he had been wronged.  My crime was that I wasn’t willing to be his devotee.

“It is your loyalty that I desire,” he wrote.  “The loyalty you have to your son and mother.”

I thought it was absurd for a mature adult man to say those things, and it was.  Plus, if he had been the man he’d pretended to be, then he would have had my loyalty.  I concluded he hadn’t really wanted me at all, nor my loyalty, because when he had it, he trashed it.  The man wanted nothing more than a lifeless doll.

I was tricked, deceived, used, manipulated and conned.

Narcissists are great tricksters.  Anyone can fall prey.

There were many red flags in the beginning, but wow, was he good at lies!

In the start of his con, he had constantly told me me how wonderful I was and how he adored everything about me.

When a man puts a woman on a pedal stool, constantly praising her, telling her how awesome and wonderful she is, she should beware.

I’m not talking about real love or the wonderful sensations of falling in love.  I’m not talking about the kind of love that grows out of mutual respect and sincerely getting to know another person. I’m talking about a person who is lying, pretending and putting on a show.  One day this will turn and you will hear just the opposite.

Narcissists play games.  Pathological destructive games that hurt and damage people.

He told me after he gave up trying to impress me, that he had never known love.  He said he didn’t feel anything.  He said he had used me, “to feel emotions, mainly through having sex.” 

“You felt something,” he remarked, adding, “so that’s what I liked about being with you.”

Much of his behavior was a way to mimic being in love.

He bragged about all he had provided for his son and how sad it was that my son had not had the same.  No socks or glasses, but he offered to pay for me to have a face life.  He’d had several.

He was terribly threatened by my having a few normal friends and a family.  Big red flag.

Loving a person means wanting the best for that person.  It means wanting them to thrive.

It may be true that love hurts, but this is different than the hurt that comes from abuse.

I had had no reason to think the man was acting and lying, aside from my gut screaming out at me.  Most of us take people for who they say they are.  We can judge them by how they act around us and treat us, along with listening to how they speak of other people.

Malignant narcissists have a damaged character.  They portray a public image that has nothing to do with who they are, but this is for the public and it is not what people close to them see in private.

You may see on the outside a confident and outgoing person, seemingly quite concerned for the well-being of others, a social butterfly, a community leader, a leader in a church, a member of well-respected organizations, a giver to charity — but on the inside is an entirely different story.  There is a person without any substance and sadly, he knows it.

Any person can be a victim of abuse. Recognizing red flags is important. Listening to your intuition is too.

Sometimes we do not know what is happening to us until we discover that there are actually words to describe the experience.   Knowledge really is freedom.

If you are in a relationship where you feel confused, like every single thing that goes wrong is your fault and you begin to feel badly about yourself, like you just aren’t good enough, all the while you hear someone say how much he or she loves you, something is definitely wrong.

I hope those of us who have been hurt in a psychologically abusive relationship will heal.  I hope we will recognize signs of an abusive personality and walk the other way. 

I hope we will choose love and leave abuse.

Thank you for visiting my blog.


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Community and disability

I’m Dogkisses and I’m mad!  Mad as in angry, more than a bit peeved, seething, and any other word that fits, besides insane, which I may be that too!

I’m mad that I simply don’t know what to do to help my son who has schizophrenia.   I’ve been working so hard for years and I’m tired!  I’m mad because all my ideas are hard to put into place unless he is on the same boat as I am and apparently, that is not the case, not at all.

Because he isn’t on the same boat as I am then when his illness gets worse, which at times it does, I must rely on psychiatrists.  It’s like eating beans and rice when you know good and well there are plenty other kinds of food, much tastier and much healthier right there for the eating, but you can’t get to them.

I’m mad about a lot of things and have been for a long time.  I don’t know which way to turn.  If I had money I’d get a dog sitter and go to some tropical island and consider things.  But alas, I do not,  so here I am, in my apartment wondering what the hell to do — besides write that is.

I’m  mad that this thing called fibromyalgia and maybe even worse, Chronic Fatigue Syndrome, along with a virus I have bringing with it weakness and  days of nausea, all just keep on keeping on!

It is hard to help my son or anyone, including my dogs when I’m too tired to think!  I simply hate it.

My grandmother told me when I was a little girl that certain words were  not good to use.  Like the word hate.  First of all, she said it was a sin to hate.   She also said it would make you sick and would not do anything to the object of your hatred.

I used to be a new-ager in the 1980’s.  Perhaps I would have given my fibromyalgia and chronic fatigue a mental hug and embraced the great teachings I gain each day as a result of having pain and being exhausted all the time.

Well, it is 2009 and I’m not hugging either damn one!

My grandmother told me not to swear either but I can’t get everything right.  I did once swear in front of her, but only once.  I don’t know what kind of soap she used but believe me it really really tasted bad! It kind of got stuck on my tongue and she stood and watched while I,  “washed my mouth out because I said a dirty word.”

I wish she was alive now so I could go talk to her.  I don’t know what in the world she would say though.  I imagine she would tell me to turn to God.  She would probably tell me that it was out of my hands, all of it, and give it all to God, specifically to Jesus Christ, since she was a Baptist.

I wonder what would she would think about modern psychiatrists!  My grandmother didn’t get angry like I do.  She did know what hard decisions were though.

I just found out recently that she had to seek commitment papers on my father more than once.  He was an alcoholic and would drink until he would get so sick he would be nearly dead.  He would drink, “rubbing alcohol,” when family members poured his beer or liquor down the drain in the kitchen sink, the latter of which as a young child, I blamed on the former.  I thought it much better to leave the liquor because I’d seen what happened when he drank the, “rubbing alcohol,” that was kept in the bathroom.

Back then the only place for him to go to detox was the state’s mental institution.  I also learned he escaped from there, which today is unheard of.  My mom told me that my grandmother helped in his escape.

They had it all planned.  My dad had his suitcase outside of the place, hidden behind some trees.  My grandmother told my mom they were just going to visit him.  My mom was the driver.  The next thing my mom knew after pulling into the parking lot my dad was in the back seat of the car saying, “Hurry up, let’s get out of here.”

So she had to commit him and then help him escape afterward.  Sounds about like what I do.  Escaping looks a lot different these days but basically that is what you do when you get “discharged.”   You have successfully and legally escaped.

I get pretty worked up about commitment papers and trying to save someone from a disease that is treated more like an alien and the patient like a hostage under lock and key.

I am way more than frustrated with what is offered to him as, “treatment,” and a great deal of the time, what is taken away from him.

I’m mad because The Literacy Council in the town he lives in just dumped him.  They have a Basic Skills Development Center, which offers many different educational services and programs.  They set my son up with a tutor only a couple of months ago.

Getting him interested in something enough that he will actually make a commitment is challenging, but he absolutely loved going to see this tutor each week.

He usually sleeps late yet every tutoring day he would call me early, knowing that I rise early to write, to make sure he knew the right time.  He usually walked there because he doesn’t have a car.

I’m too mad to write about it!  I should ask for a letter from them as to why they dumped him.

“He has a problem with memory,” one of the staff members said when she called to tell me they had decided, on their own, without consulting anyone about it, to immediately stop offering my son services.

He has a thought disorder, causing disorganized thinking and YES, HE HAS A PROBLEM WITH HIS MEMORY!  Duh!

Anyone ever heard of the working memory at this institution for education?  Somehow I doubt it.

Didn’t they totally go against The American’s with Disabilities Act?”

I’m mad because I don’t know this law up and down.  I should.

I believe this organization gets money from our government, along with other private sponsors, so why are they immune to dismissing a student due to his or her disability, which is exactly what they told me they did?

I asked two people, one being the executive director, if I was clear about why they stopped serving my son and went as far as to ask if there was something I did not know, some other reason besides his memory problem, that had brought about this decision and she said no.

So I’m mad!

I’m mad at the people who think without knowing that this town’s reputation is in some ways a fairy tale.  It is a place reputable for being a progressive town, with all kinds of different community services and of course the best of the best when it comes to any type of medical care because there are two of the best medical schools in the country here.

Much of it is true but when people who are in positions of power assume a service is available just because well, because they think it is — drives me nuts!

As I was pleading with the Literacy Council not to dump my son telling her how much he loved it, how it stimulated his mind, how it gave him something to think about and talk about, how he was always there and excited to learn — she said, “Well, I’m sure there is a service around here offering…” and I cut her off.

“No.  There is not,” I said firmly.  I had told them when he started receiving their services that I couldn’t believe I hadn’t known about these services before.  We’ve been here six long and hard years and finally, finally he got somebody who would sit with him for an hour and a half!!!

Finally someone was going to spend some time with him.   Finally someone would treat him like a human being instead of a person who what?  A person who you cannot expect to learn?  A person who made A’s and B’s in school, who is intelligent, but because of  a thought disorder, a thinking disorder causing disorganized thinking — hello! — because of this — I nor anyone else should expect him to learn?

Unless of course he takes a fat dose of a mind body altering chemical!  Then, he probably won’t learn, but at least his behavior will be socially acceptable and freaaaaking pleasing!!!

Well, now it is night, which beckons me to relax.

I could trash this post but I think not.  I will instead click Publish.




Fibromyalgia HURTS!

“How often do you wake up in pain,” my good nurse asked.

“Pretty much every day lately,” I told her.

Her question was the first thing that came to my mind today as I was waking up. 

I lied there for the first few minutes,  as my brain processed how much pain I was feeling.  I thought about my medication and how it was only steps away.

Having overslept, I was an hour late with my dose and when I woke up, there it was!  Severe Pain all over my body. 

It’s hard to know how much pain to accept, tolerate or live with, when you live in a certain amount of pain all the time.  It’s also hard to recognize when pain has worsened until it eases up and I think wow — I was hurting a lot!

I decided about three years ago to take medication for widespread ongoing pain.  

“Pain and Living,” is one of my posts in this blog, which was written about the time when I decided that enough was enough.  I could only tolerate so much pain.  I had met my limit.

I wanted a chance at living my life.  I began to notice a difference in the quality of my life right away after going on medication for pain.

I was doing well with the medication.  This means the level of pain I was experiencing was much lower and at times, managed well enough that I could do things I hadn’t been able to do in a long time.

Things were going pretty good and then came life.  Regular ordinary life.

For me, regular ordinary life includes intermittent crises.

Stress triggers fibromyalgia and fibromyalgia is stressful.

My most recent stress is that I took a hard fall from my magic bike.  

Within a ten-day span, I went from having a very sore elbow, shoulder and back, to waking up with severe back pain and finally feeling pain in every place in my body that has tissue.

Fibromyalgia covers a lot of ground.

Yesterday I was able to do some house chores.  Some days I wake up and realize I’m able.  I know I’m supposed to pace myself, but when I get these able days I try to catch up on things, especially dishes and bathroom chores.

Laundry is the hardest because of lifting clothes, out of the washer – into the dryer – out of the dryer – then folding them.  Standing in one spot is hard too, which makes cooking and doing dishes a painful and/or fatiguing experience.

My sweet dog, a great insect hunter, barely brushed against my femur bone when I lied down after my chores and it felt like I was kicked in an already bruised spot.  Fibromyalgia pain sometimes feels like my whole body is bruised.

My insect hunter, along with our other 4-legged relative, have been lying as close to my body as they can get over the past two weeks since I fell.  They’ve literally had me locked down on the sofa a couple of times.  The big one lying across my feet and the little one, only 45 pounds, likes to get anywhere she can and if that means on top of a leg or an arm, then that is where she gets.

Last night, after my day of chores, I woke up about 9pm on the sofa.  Both dogs around me.  My body was hurting all over.  Moving was a struggle.  I budged one of the dogs and she didn’t move.  They were sleeping good.

I had overdone it with the laundry for sure!  I’m not very good at giving in to rest.  I truly needed to have that as my top priority.

By the end of today I cried some.  I had walked the dogs.  Not as far as they needed to be walked, but it was nice and we got a little sunshine.  I let them smell where their little noses wanted to go.  Lots of people just walk their dogs, but I let mine stop and smell.  I once read where it’s good for a dog’s olfactory system to smell things every day.  That made sense to me and I like things that make sense.

Dogs have what the native Americans call good medicine.  Their medicine is loyalty.  They give.  This is what they do.  They give.  They are wonderful nurses!

Pain is stressful.  It is tiring.  Living with it all the time is depressing.  It just is.

“How often do you wake up in pain?”  My nurse’s question lingers in my mind.

How often is too often?


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My magic bell and fibromyalgia

with fibromyalgia injuries take longer to heal

intact, after the fall

My magic bell was the first thought I had after I hit the wet pavement.  Did it break I wondered?

As you can see from the picture here, it did not break!  Nor did my head which is good ’cause I didn’t have a helmet on.

“You know how it is with you.  Because of fibromyalgia when you get a localized injury it spreads to other areas,” my doctor said.

“Well, umm, how long do you think my back will hurt?”  I knew the question was one he couldn’t answer.  I don’t know why I asked. He just looked at me.  I don’t remember if he said anything.  I think he simply nodded his head to communicate that he didn’t have a clue.

It was my elbow that got cut open.  My shoulder hurt and my knee,  but after a few days the rest of my body began to hurt.  I was in a great deal of pain as I sat there with my family doctor.

I know you can’t see any bruises I told my doctor, but my body really does hurt.

With a tender tone that was much appreciated he said, “I believe you,” and I knew he did.  He believes me when I tell him I am in pain. This is a blessing when you have an illness that is not only misunderstood but also denied by some as being a true medical entity.

Fibromyalgia.  I think I am mad at this word!  This medical entity!  If I was superstitious or believed in demons possessing one’s body and soul, then I would sure be having an exorcism performed!  But I don’t believe in that, nor do I believe, at least in my rational mind, that I am being punished by God.

Having been brought up in the south with a strong Southern Baptist influence, I must admit that I do actually think and sometimes feel that I am being punished, which I believe is a direct result of what I learned about God and Jesus.

My grandmother told me that Jesus was watching me all the time and that he knew every single thing I did.  Well, that right there shaped and formed a large part of my world view.    I think this must get in a person’s brain forever, these things we learn as children.

When I am in severe pain or have been too fatigued to do anything for days on end, even think, sometimes I find myself lying in my bed, crying out to God and apologizing for all my sins.  I ask why and how am I supposed to do anything if I have this illness that at times renders me totally useless!

My rational mind tells me I’m not being punished and that I am a human being who is not immune to diseases or illnesses.   The pain I live with, the fatigue and the depression because of it all,  is part of the human condition.

I didn’t feel my elbow for the first minute or so.  I hadn’t felt it yet when my son said, “Mom, uhh, you did something to your elbow.”

I lifted my head attempting to get up.  “Mom just lie there.  Did you hit your head?”  I wasn’t seeing stars but walking back home with my son walking behind me with our bikes I couldn’t move my arm.

“I think there is a rock in there,” my son said and that’s when I felt dizzy.  A rock in my elbow.  The thought of it was nauseating to me.  I’m used to pain but not this kind of pain.

My doctor who is gentle and understanding was on vacation when I went to get my stitch out.  The doctor I saw was not like him at all!  I think she thought I wanted pain pills but I told her I had plenty.  I wanted to know if I had hurt my back because it was hurting.  I asked her to examine it, which she did.

“I think this is fibromyalgia.  It’s definitely tissue related.  You’re thin and when you have a traumatic fall like this, with fibromyalgia,  it can…”  I don’t remember how she worded the rest but I didn’t need to hear the words.   They are all the same.

If pain is due to fibromyalgia then basically this means it can behave any way it wants to.  It might be there a week or six months.  It might be localized or widespread.

Sometimes I guess I wish the doctors would say — oh this is something we can fix — and give me a time frame as to when I will be feeling better or recovered.

Update on July 11, 1010 The doctor says that a ligament in my left shoulder and a tendon somewhere around the bicep were strained and pulled.  It still hurts when I move it certain ways.  I fell on October 31st, 2009.

An Ode to a Narcissist

“Some women can fake an orgasm. But some men can fake an entire relationship!” – Sharon Stone

I will tell you…

I will tell you I love you. I will tell you I am in love with you.
I will tell you over and over and over again and again.
I will tell you until you believe me.

I will always open doors for you, so you may think
I am a true gentleman.
I will run in the rain to my shiny car for an umbrella,
just for you, my sweet angel.

I will tell you how special you are. I will tell you again and again.
I will tell you how I am absolutely without a doubt sure that you are the one for me.
I will tell you this until you believe me.

I will give you nice gifts. I will tell you it is because you have lived without for so long,
I will tell you how it makes me happy
to see you enjoy these things in life.

I will tell you how I want to help you. I will tell you this
again and again.
I will tell you things that will make you dream of a better future.

I will tell you all the things that I can think of to make you give up on that other man,
the one who treats you with too much love.

I will do all I can to make you think you are the one for me,
that my love is known to me and real.

I will tell you who loves you when nobody else is there for you.

I will tell you not to worry if my love is real my dear,
again and again, over and over, I will tell.

I will tell you your doubts are to be abandoned,
I will tell you this each time you doubt my love.

I will tell you I can help you,
make your life easier.

I will tell you how I want to declare my love for you to your family,
“I will tell them how awesome you are.”

I will tell you how I will exclaim my love for you,
In the future, when I don’t have to hide you.

I will tell you I like your son and family,
I know they are so important to you.

I will tell you it is the truth once you finally start to believe,
all that I tell.

I will work hard to win your heart,
I can, I am very smart.

I will tell you I am doing fine, after that first time.

That first time when I feel like you are going to hurt me.

This — sweet angel — is when everything changes.

I will tell you a first lie,
a second, a third and more.

I will tell you and you will believe me,
then my sweet angel, it will be near the end.

I will tell you little things,
designed to burn a bit and sting.

I will tell you I feel mistreated,
hoping you may not see that it is you being played.

I will use this lie to leave you,
the telling has changed.

I will tell you I am leaving town.
I will tell you not to bother calling.
I will tell you more lies.

I will tell you the truth only when I think it might hurt you.

I will tell you that I almost had an encounter,
I will say that I had to stop because I thought of you.

I will think you must be a dumb little slow-talking country girl.
I can tell you anything and you will believe it!

You, however, will know, what I tell, is a lie, and you will hurt.
I forgot to tell you,
I am detached from my heart.
I am capable of not feeling.

I will tell you I do not feel important enough.
I will tell you how I feel second.

I will tell you how I fucked her.
I will tell you I got hard when I looked at her body.

I will tell you even when you start to cry.
I will tell you how you don’t like for me to lie.

I will tell you I enjoyed it.
I will tell you how I came inside of her.
I will tell you I came there, thinking of you.

You will be stunned.
I will feel like a stud.
I will tell you anything I feel like telling to make myself feel better.

I will tell you all about me because that is what this whole thing with you was,
about me.

I will not tell you that I used you.
I will not tell you how many lies I told to you.

I will tell you I am sorry,
as I walk away at 4 am, no plans to make amends.

I will tell you I probably assassinated one of your plants,
living plants you nurture and love.
I will tell you I had nothing to do with it, of course.

I will leave the broken pieces behind,
for you to pick up alone, after I am gone.

I must hurry to the church!
I will tell God I am there to help.

I wonder if God believes as easily as you,
my sweet angel?

 

by “dogkisses” 2009

All content on this page and in this blog is subject to A Creative Commons Attribution-NonCommercial-NoDerivs 3.0 United States License.

 

Thank you for visiting Dogkisses’s blog.

Fibromyalgia, Attitudes and Acceptance

The Buggy Ride

Find Something Fun to Do

Fibromyalgia, as with any serious and chronic illness, can drastically alter your life.  Mine has certainly changed.

I had a business planting flower gardens to attract butterflies, which I totally loved.  Being a butterfly (and hummingbird) gardener was a big part of my identity.  There were many things I identified with and didn’t know how much until I couldn’t do those things anymore.

I remember when physical pain first started to concern me.   I would go out to my garden every day to do something.  One day I noticed how stiff my joints were.  I bent over and felt pain in my hips.  Then it started hurting in my ankles.  It was a new type of pain that I had never experienced before.

I’d been bitten by a little deer tick earlier that summer.  Little did I know this might change my life.

One doctor said I might have fibromyalgia, even though hardly anyone talked about the condition at the time.  It was nearly a foreign word.

Due to inadequate health care where I was living, I didn’t get to see a specialist.

I had dealt with arduous episodes depression in the past.  I had already in many ways, gone through a process of elimination as to what I identified with in life.  I stopped my gardening business and later went back to college part-time.

I moved to a metropolitan area after the tick bite that summer when the joint pain had started.  I believed the health care would be better and I think it has been.

I was bitten by another tick in 2005 and I was infected with Rocky Mountain Spotted Fever.

The doctors diagnosed me with Chronic Fatigue Syndrome and later, fibromyalgia as well.  By 2006 my life had turned upside down and illness defined every moment I lived.

Just about everything in my life has changed.

I can’t imagine, not as I write, what kind of job I could hold down with the levels of fatigue, brain fog and pain I’m living with.

I certainly can’t plant gardens anymore.

My hobbies are less active. My walks are slower.  I let my dogs walk me more, instead of me walking them for my cardiovascular workout the way I did before illness.  We go slower and stop more often.

Time is different too.  I can’t plan for events like I did before, which means I miss out on many things I once enjoyed doing.  I don’t know if I’ll be in pain two weeks from now or even tomorrow.  I could wake up so tired tomorrow morning that brushing my teeth will feel like I’m climbing a mountain.

I am grateful to receive disability benefits. I have health insurance.  It’s pretty hard making it on a low income.

Some people look down on those of us who receive disability benefits.  People complain about their taxes, but I pay taxes too.  Every day in some way I pay.

If a person can walk and talk then some people accuse her or him of being lazy, enjoying sitting home, doing nothing;  all just to get, “a check.”

The monthly income from disability benefits is important, but the health benefits and housing opportunities are a crucial part of disability benefits.

I was once a firefighter too.  Part of my identity had always been that I was physically very strong.  I was proud of this and enjoyed recreational activities, especially while raising my son.

Another part of my identity was being able to handle a lot of responsibility.  I was a single mother who worked hard and I burned the candle at both ends.

An expert in fibromyalgia told me this is the case with many people with this condition.  The majority of patients, he said, never were the kind of folks who sat around all day doing nothing.  Just the opposite for most of us.  We were athletic and go-getters.

I grew up in a very orderly and clean house, which is how I prefer things, but that’s one of those things that changes — preferences.  I’ve had to give up many of my preferences.

I hear all kinds of remarks from people who don’t understand what they can’t see.  I learned from having depression that having an invisible illness, such as fibromyalgia brings stigma and misunderstanding.  Many people don’t believe what they can’t see.

People say the weirdest things.

“I work in my yard (all day) because I have to.”

“I have to work everyday because I don’t have a choice.”

I stopped working because I didn’t have a choice.

“I wish I could get paid for feeling bad,” a neighbor told me.

“All you do is suck air,” a close relative remarked when learned that I was receiving disability benefits.

“You just get worse and worse don’t you.”  (Same relative).

“You sure do stay sick a lot.”  Lots of people have said that to me over the years.

Some people mock fibromyalgia.  Most people have no idea what it is.

Those of us suffering with invisible illnesses know that these attitudes and remarks are ignorant and not true, but they can still hurt.  Not only do they hurt, but they also cause us to withdraw into isolation.  We become alienated from society, our community and for some of us, from our family.

People with fibromyalgia often talk about having good days.  This means we have days when we wake up with some energy and less pain.  We can do more on these good days, which causes some people to think we’re faking illness.  If they see us on a good day, then we get accused of falsely claiming illness or disability to get out of work.

We’ve all heard people say, “You look just fine.”

A former doctor of mine once, during a frustrated conversation about pain, asked, “Where do you hurt?”

It was more of a statement than it was a question.  I didn’t know what to say.

“Well, my nose doesn’t hurt,” I answered.

She once referred me to a specialist for a digestive problem.  He was horrible!  He asked about the fibromyalgia, and then depression.  He was determined to believe that any problem I had, even the one I was there for, which was the result of an infectious virus, was all in my head; not neurological but psychological.

The doctor had suggested I go see the fibromyalgia specialist who had moved away.

“You look perfectly capable of driving four or five hours to me,” he said.  He failed to realize that I would have to go see the doctor and drive back home!

He continued and asked, “Did you walk here from the parking lot?”

“Yes,” I said, trying not to cry, but the tears were coming.

“Well, then you could drive four hours if you walked from the parking deck, and why are you crying?”

I had forgotten that I had instead ridden the minibus to the front door of the hospital from the parking lot.

“Why are you crying?” he asked again, sarcastically.

I told him I was sick, in pain, weak and tired.

I chose to change family doctors, never to see that specialist again and, my life has been much better ever since.

My current family physician understands fibromyalgia is a complex and painful condition.  He did suggest that I make a trip to the fibromyalgia specialist, but only when I was able.

I was finally able to go see the doctor.  I told him that my family physician wanted his advice.  He said to tell him he was doing the right thing by treating my pain.

He reminded me that it isn’t my fault that drugs, such as Lyrica and Cymbalta, made me sick.  Some patients cannot handle those drugs.  I’m one of them.  Some patients need tried and true pain medication, for pain.  Perhaps that is a little too simple for some doctors.

The specialist also said a patient should not be expected to live in pain when there is medication available to treat it.  He said it was neglect when doctors choose not to treat pain.

I told him about the remarks from my former doctors and nurses.  He said to stay away from those people adding with a compassionate tone and a bit of humor, “They are bad for fibromyalgia patients.”

He was a great doctor!

Even though we know more about fibromyalgia now than we did only a few years ago, there are still plenty of doctors and other medical professionals who will say just about anything other than, fibromyalgia hurts!

They’ll say things like, “It’s a label you do not want.”  They ought to say it’s a serious illness you do not want!

We’ve most likely all heard the phrase, “It’s a trash can diagnosis.”

I think many people do get wrongly diagnosed.  I’ve met a couple of people who said things like, “I had fibromyalgia for about three months.” Thinking

It’s hard to let go of all the things I used to love doing.  It’s hard accepting chronic illness.  It’s harder hearing hurtful remarks from family.

I have a few things I enjoy doing.  I started this blog, which I do so enjoy.

I love living with dogs.  They take me for walks and help me get through many hard times.

I have a “magic bike” and though I can’t ride it up hills or too far, it’s great fun feeling the wind on my face.  It reminds me of myself.

I hope if you or someone you love are living with chronic illnesses and conditions, that you can find something to do that makes your life easier and more meaningful.

Thanks for visiting Dogkisses’s blog.


dogkissesthat's a mighty cute dog!dogs never accuse you of faking anything