Finding my favorite tree

“I’ve watched you since you got off the interstate Mam,” the highway patrol officer said.  His head was shaved and his cheek had a bulge from whatever form of nicotine he was enjoying.  “You seem confused,” he added.

I had pulled the little Chevrolet I’d borrowed to the side of the road.  Just as I turned off the engine the blue lights came on.

“I was looking for a place to use a restroom,” I responded, which was true, although I was actually looking for a place to find my favorite tree.  That’s what we called it when my son was a cub scout.  “I didn’t think I’d make it to the one in the grocery store and I saw this road.  It looks like an okay place.”  It actually looked perfect.

“You acted like you didn’t know where you were,” the officer said.  “You took a different exit out of the parking lot than the one you came in on.   That is suspicious behavior Mam and that’s really why I’ve followed you since you came off the exit ramp.”

I didn’t have such a good feeling.

“I saw this road and that sign says I can get back on the highway from either exit,” I told him, which would be the last logical sentence spoken during what ended up being nearly a three-hour long interrogation.

“Yes, the sign does say that,” he responded, “but most people know that the way you chose is the long way.”

“I’m not from here Sir,” I said.  “I didn’t know that.”

“Yeah, you don’t see many signs like that,” he added as he spit on the ground.   “The arrows are pointing in opposite directions that goes to the same place.”

Exactly I thought!

“You drove around in the parking lot before you decided which exit to take.”

I thought we had cleared up the, “confused,” part already with his confirmation that the sign was a strange one.  I was wrong.

“I need to see your license Mam,” he said. “You didn’t have your seat-belt on.”

I had a feeling it was the seat-belt, but I would soon learn it was much more than that.  My bladder was too full to have walked inside of the Food Lion to the back of the store where I assumed the restrooms were.   Wendy’s drive-through window was open but they said no when I stopped and asked if I could use their facilities.

I saw a side road behind the Food Lion, along with a patch of thick trees. Perfect spot, I thought. The parking lot exit was only about ten or so feet from the narrow darkened road.  I thought about my seat-belt, which I had taken off, but in my tired state of mind with a full bladder, I only wanted to find a tree and thought I’d be safe in that short of a distance.  I was wrong, again.

As he walked away with my license I leaned my head out of the window a bit.  “Sir, may I get out and go over there,” I pointed to the patch of tress. “

“No Mam,” he said firmly.  “You stay right where you are.”

So I did.  I waited as the lights flashed.  I was exhausted.  My life was crazy.  My son was not well.

The time was around 1:30am.  The place was a rural North Carolina town that was half-way between my hometown and where I was living in the mountains of the western part of our state.  My travels to visit family often included stopping there for a break from driving.  Once in a while we would eat or shop in the historic downtown district.

I was driving a car that belonged to my mechanic,  so of course, there were a few things wrong with it.   Some mechanics neglect their own cars.  My mechanic and dear friend, Sonny, always kept his cars running, but that didn’t necessarily mean keeping up with things like the inspection and license plate.

“Have you been drinking?” he asked when he returned.  “I thought I smelled alcohol.”

I’m like Jim Carey was in that movie where he couldn’t lie when I get  nervous, and this officer was making me nervous.

“I had less than a third of a beer in Chapel Hill, but that was with dinner around six or six-thirty,” I told him quickly.   I’ll take a breathalyzer now if you want me to.  I’m not intoxicated.”  I was happy to do it thinking I’d get away from him, possibly with a ticket, but then I could go somewhere to pee!

The officer was more than glad to give me the test.  “Come with me,” he said.  “I have to administer it to you in my vehicle.”

So I did.

I was wearing a short jumpsuit dress and flip-flops.  I sat in his car acutely aware of the length of my dress, which I noticed had not entirely missed his observations.   He prepared the test.  I’d never seen one before nor had I ever sat in a patrol car.  I kept trying to make sure my dress stayed put as I sat there getting more and more nervous.

He spit in a jar that he had a place for in his car.  I took the test and passed, without any trace of alcohol.

“There,” I said.  “I told you I’m not intoxicated.  I’m tired and I need to pee.”

“These things don’t always work.  Sometimes you get a false report,” he said.

I don’t know what I thought but being nervous triggered my essential tremor, which is a neurological disorder that makes you shake.  My entire body began to shake on the inside and I knew, within minutes, I’d be shaking all over.  It started in my legs.

“How about I give you another test,” the officer said.

I knew the test he meant.   I assumed I would fail because of the tremor.  He wanted me to walk straight lines with my arms out and touch my nose, etc…  Something I’d only seen on television.  I told him about the tremor and how it also affects coordination.  He ignored me.

I took the test.  It was difficult and I felt like I was completely failing due to the tremor.  Standing on one leg with the other up in the air and my arms and hands doing weird things at the same time, well, it was insane!  He said I passed with flying colors.  I couldn’t believe it!

I thought I’d be leaving soon.  I was wrong, again.

A female officer arrived about that time.  Boy was I glad to see her!  He told her it was a seat-belt violation and he could handle it.

“Sir, may I relieve my bladder while she is here?”   She appeared okay with this looking to the officer, obviously to see if it was alright with him.  I was hopeful.  He  said no.  Plain and simple.  “I’ll take it from here,” he had told her and she left.

“Let’s go back in my car and talk,” he said.

He told her to leave.  I don’t know why I didn’t ask that she stay.  My full bladder and essential tremor took over my ability to think clearly.

Back in his car, we talked and talked and talked! I explained why I was making the trip and why I was so tired.

“Have you used any other substances today Mam?”

He asked me this question about fifty times or more.  Over and over he kept asking.  I kept answering with the same answer, which was no.

“Your speech is off,” he said.

“Yes Sir,” I responded.  “The tremor makes my voice shake, especially when I’m tired.”

“It’s against the law to drive when you’re this tired,” he said.  “You should have stopped before now.  You could have checked into a motel.”

“I can’t really afford a room ,” I told him.  “I actually did stop two exits back but the motel was closed.”

“Yes I know the one,” he said.  He named the owners mentioning that they would definitely be asleep.  Thank God I thought.  He believes me so I’ll be on my way soon.  Well, I was wrong again.

We continued to sit there along the dark road, alone.  He continued with the same question, “What other substances (besides the small amount of beer I’d had seven hours earlier) have you used today Mam?”

“None,” I answered him, again.

There was a strange scent and I knew it was coming from my clothes.  I began to assume that if I could smell it, then likely so could he.

Perhaps he thought I was not a tired mother in a crisis at all and instead a good actress whose crimes would get him a promotion or something.

My friend, whom I’d had dinner with in Chapel Hill, along with his elderly mother-in-law, whom I’d drank the bit of beer with, had smoked some strong-smelling Ganja during our visit.  My clothes were dank with the scent.  I had not joined in, but I would have if I hadn’t had to drive home.   My friend’s mother-in-law smokes the best in the land and  I must say she sure seems to be healthy and happy.    Now in her nineties, she’s still kickin’ and still puffin’, although I think she has taken to drinking tea instead.

I think my bladder frozen.  I began to forget that I ever had to pee.

The interrogation continued.  Finally he said, “Can you say your ABC’s backwards?”

“No,” I answered, “I don’t think I could do that.”  I had never tried but I was pretty sure I couldn’t do it.  That isn’t how my brain works.  I don’t think I could do it in the best of my hours.

“Okay then, I’ll have you say them in order,” the officer responded.

I thought this was funny.  Easy breezy I thought.  I was wrong again!.

“Well,” I asked, “How did I do?”

“Not good,” he said.  “You failed.  You made three mistakes.”

“What!”

“You didn’t even end with a Z,” he said.

He held out a paper.  “Here, I’ll show you,” and he showed me where he had written my mistakes.

“Well I haven’t had to say them since my son was in elementary school and that’s been a long time,” I said.  I tried joking when I said, ” I could sing them because that’s the only way I’ve ever really said them out loud.”

He responded with, “What other substances have you used today Mam?”

“I haven’t used any other substances Sir”

We sat there.  He talked a lot about keeping the public safe, which included protecting them from people like me who were driving while tired.  It was his job he kept repeating, in between his questioning me and spitting into his jar, to keep citizens on the highways safe.

“It isn’t only the other people on the road,” he said.  “It’s also my job to keep you safe.”

“If I could use a restroom and then have a cup of coffee,  I’m sure I can make it home.  I only have an hour and a half to go,”  I told him, but I didn’t get any response.

I stood my ground.  I wasn’t about to tell the officer that my friend had smoked some herb.  He most certainly would not believe that I had not partaken, which I had not.  Would you believe it?!

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

I drove into the parking lot of the Waffle House near my apartment around 4:30am.  Finally, I got to pee.  I ordered breakfast.  My adventures were not over yet.

Two men with guns came in while I was there.  “We’re here to rob this place,” one of the men sheepishly announced.  The only employees working at the Waffle House were female.  The two men were obviously intoxicated. One went to use the restroom!

“The police are on their way,” one of the female cooks told the men.  They waited a few minutes.   No officers showed up.  “Their coming,” she said a few minutes later.  She continued to cook and serve the customers, while the men stood there looking around the place, which was another oddity.  The customers were all women around the same age, most likely in their forties.   I wondered what were we all doing at the Waffle house eating alone at a time such as 4:30 AM?

The cook said something like, “They’ll be in any minute now,” which sounded like a mother threatening a child with a father’s discovery of some wrong doing on the child’s part.   The men turned around and walked out the door.  One of them slurred out a few obscenities directed at the women, but not until he was outside.

“Why aren’t the police here?” I asked my waitress.

“Oh, we didn’t really dialed 911,”  she said.  “We get all kinds in here.”

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

As I walked into the courthouse thirty days later, my tickets and cash in hand, there were four sheriffs standing there to search my handbag.

“Could you please dump the contents of your bag here Mam,” one of them requested.  They all looked the same, which was exactly like the officer who had interrogated me.  They were all chewing on something too.

I was traveling light.  My tickets, billfold and keys were all I had in my bag, I thought, until more than a dozen rainbow-colored condoms covered the table when I emptied it.  The sheriffs looked at one another.

“I give those to homeless people and teenagers in the town I live in,” I told them.  They all grinned at each other.

The health department where I lived always had a huge garbage can full of free condoms.  There were lots of hippies, wayward teenagers and homeless people who roamed or lived there.   I had gone for a doctor’s visit the day before court and filled my purse with the condoms on my way out.

Walking away from the Sheriffs on my way into the courtroom, they snickered and one said, “Have fun in there Mam.”

The interrogating patrol officer had finally decided to let me go with a couple of tickets, including driving without a seat belt, an expired inspection and expired tags.

Sonny!  He was so nice to let me borrow his car.  He filled the gas tank, checked the tires and oil and knowing Sonny, probably gave me twenty dollars for an emergency.  He didn’t think about inspections or tags.  Sonny, who passed away recently, could have probably driven anything he wanted to in this town.  He was a well-liked man.  Most of the county sheriffs knew him and I do believe they would have been hard pressed to have given him a ticket.  He had probably fixed their cars or their parents’ cars in the past or loaned somebody they knew money during a hard time.  Sonny was an awesome man and I sure do miss him.

Fortunately because it was a borrowed car, the judge dismissed the expired tags and inspection and I paid the fine for the seat belt violation.

“Have a nice day Mam,” the officers, who had apparently enjoyed the colorful contents of my handbag said to me as I was leaving.   They were still grinning —    and spitting.

I visited the elderly woman later but we hung out at her pool that time.  And that time, I’m not saying if I did or did not partake.  I didn’t drive.

This is a story from 2003 and it belongs to me, Dogkisses.

Love walks on four leggs.

My thanks to a fellow blogger, Debbie, for sharing this moving and creative video with me and for showing me how to share it with you.

Maintaining power

quitclaim, by IconDoIt

“You can’t maintain,” the social worker said.

“I thought you helped people who couldn’t maintain,” I responded, knowing my words were futile.

I regret going to the social services yesterday.  I felt good when I woke up.  I had some energy and a smile to go with it.  I took a shower and put on something I enjoyed wearing which I think was a mistake.

I wore a pair of blue jeans.  Maybe it was because they were Capri length and not the faded and lately, baggy, jeans I usually wear.  I can’t recall which blouse I wore but I remember wearing a necklace and earrings.  I need a hair cut so I used hairspray to keep my bangs out of my eyes, which I don’t like using.  Hairspray makes my hair sticky or stiff and I’ve never liked it.

I’ve been so stressed lately that I can’t find things, like my hair clasps I would have worn instead of using spray.  Maybe my hair looked too stylish since it was all puffed up.

I wonder if I looked too nice to be a good candidate for assistance with a large power bill — assistance that she said was available and that I qualify for.

I told her I had been sick but she gave me a weird look.  The kind of look that implies she did not believe me.  I told her I have Chronic Fatigue Syndrome and Fibromyalgia but she didn’t respond.

“I’m filling in because everyone is in court,” the woman told me, which I thought was kind of odd.   Every social worker in the entire county were all at court at the same time.

“I’ll take the application and when the social worker returns I’ll give it to her,” she said.  Her next remark surprised me. “You should be aware though that if someone comes in before she gets back and ask for the same help they may get the funds instead of you.”

“But I’ve just applied,” I asked,  “what do you mean?”

“Because you’ve stated that you don’t have the funds to pay the remainder of what we can’t help you with,” she said as she kept on typing.  “If someone comes in asking and they say they can pay what we can’t pay then we will give them these funds.”

“I will pay the remainder,” I told her, “even if I have to put it on a credit card.”

The social services say that it is okay for a person who lives on a low fixed income to have a credit card.  I’ve only used mine a couple of times.  I’ve used it for a car repair, one $40.00 trip to the dentist, and once at the grocery store.  I told her I had made a $25.00 payment on it this month.

“Using your credit card to pay would only put you in the hole more,” she remarked.

Duh!

“Yes, I realize that,” I said politely.  “I’ll use my credit card to pay before I let them shut off my power service.  Wouldn’t you?” I asked her.

“Yes,” she answered.  We made eye contact.  For a moment I thought that maybe she understood the position I was in.

The department of social services also allows a cell phone and cable vision as an expense, the latter of which I’ve never had, not in my entire life.  My cell phone however has been a lifeline when my son has been in a crisis or a hospital.

Once he got lost and literally ended up in the middle of our country.  He was on that list of people who have a mental illness and are missing.  My mom came here to answer the phone if he called, while I was in the mountains with detectives searching the woods where we thought my son may have camped before getting into a van with a man who took him all the way to Illinois, a long way from North Carolina.

My son called home from a phone booth but he didn’t know where he was.  The driver of the van had abandoned him because he said my son did not cooperate by not panhandling in the parking lots of Walmart, which is apparently a common practice for some people.  They travel the country and not only panhandle in Walmart parking lots but they sleep there too.  Apparently both are legal.

My mom was as stressed as I was and failed to get proper information from my son when he called.  She called me on my cell phone but all she knew was that he said he was at a Kroger grocery store.  She did not know which state he was in.  She was able to dial *69 and get a number.  The detectives I was with helped locate the number.  We called the police there and they found my son.  I wired the officer money to buy my son a bus ticket.  He arrived home two days later.

I wonder how many psychiatrists I’ve spoken to over that cell phone throughout the past eight years while I’ve been an advocate for my son?  I bet if I had one dollar for every one I’ve talked to I’d have enough money to pay my power bill.

I use the cell phone for my own doctors and nurses too.  Anyone who lives with a chronic illness might well know that if you leave messages for doctors and nurses, you really need to be available when they return your calls.  My cell phone has been pretty important.

Without the cell phone I’d be at that phone booth and I can’t recall what state I was in when I took this picture.  Phone booths are hard to come by.

I think if cable vision is counted as an expense, then a person ought to be able to choose between that and an internet connection.  It also seems like an internet connection would be more useful than cable vision to families with children in school who need access to do homework.

I don’t know what our social services thinks about people with disabilities having an internet connection.  They seem to think cable-vision is more important and it cost a lot more, so this doesn’t make sense to me.  I’ve learned through experience that an internet connection for me is a lifeline, which cost me about twenty dollars per month, a lot less than cable.

I don’t have a car payment, thank goodness, but I have repairs.   Social Services will allow for repairs but won’t let me use the expenses I’ve incurred because I put it on my credit card.    Even though they allow a person asking for one-time assistance to have a credit card, they don’t include the monthly payments in expenses.  Go figure.

“I will find the remaining funds if you can help me and I need for you to tell the social worker this when she returns,” I told the woman taking the application.

“We have at least one hundred dollars we can pay towards your bill and possibly two hundred,” she said looking at the computer.

“That would be very helpful,” I said.  “Even if it is one hundred dollars, I’ll pay the remainder.”

I can count on one hand the number of times I’ve asked social services for help during the seven years I’ve lived here.  Each time has been a difficult experience.  It isn’t swallowing my pride that has been the most difficult part but instead is the things some of the social workers say .  I do remember one time when a social worker helped me without preaching at me or putting me down.  I couldn’t believe it.  She said something like, “Wow, how do you make it each month?”

Exactly I thought!  Exactly.  I’m fairly creative when it comes to, “making it each month.”

Usually they ask, like the woman did several times yesterday, “How did you get in this position?”

I should have said something like, “Well, how much time do you have because it all started about ten years ago.”

The social worker finished the application but she once again asked me the same question that I thought I’d answered at least twice already.

“I just don’t understand.  I’m looking at your expenses and they are less than three hundred dollars.”

“You are forgetting the power bill, which is $255.00,” I reminded her, again.

“Oh.  That’s right.”

Why the hell did she think I was there?

“Yes.  That is almost half of your income,” she reminded herself.  “But you say you can pay if we don’t.”

“Yes, but on a credit card,” I reminded her, again.

I signed the application and left.

I came home and immediately lied down on my sofa.    I’d eaten a piece of string cheese on my way there.  I had felt so well when I woke up I was actually looking forward to coming home and eating lunch.  I had lost my appetite though.  I was depressed from the interaction.  Maybe they would help me though, I thought, so I rested.

My cell phone rang and I knew it was her.

“We can’t help you,” she said immediately.

“Why not?” I asked.

“Well, because you told us you have a way to pay.”

“But you said I had to have a way to pay the remainder to qualify for the help.”

“Well, we still have questions about how you got yourself in this position.”

“I’ve had a power bill that has been over half of my monthly income for three consecutive months,” I reminded her, again.

“You can’t maintain,” she said.

“What?” I asked.

“You can’t maintain.  You’ve been in this position before.  I’m sorry.”

“Well, maybe if I lived in a tent I could maintain,” I told her.  She was starting a sentence when I hung up on her.

I didn’t care if I was rude and I still don’t care.

I don’t need someone reminding me that I’ve found myself in these shoes several times in these past eight years — and most certainly — I will not stand and listen to someone who says it like I’ve committed a crime when that person doesn’t have one suggestion as to preventing this situation in the future.    My apartment is not insulated well and as a result, I pay.

I have maintained! I’ve never had any utility shut off. I’ve also camped enough to know I can live in a tent, which I might do before I would ever ask those people for help again.

I believe if I had dressed differently and lied, although I’m not sure which part I was supposed to lie about, that I would have received the assistance that is there for me.

I have a feeling that the people who get help know what to wear or rather, what not to wear, what to say or not say, and how to act.

An acquaintance of mine called me late yesterday.  She asked how I was doing.  I told her about my experience.  She’s been in my shoes, only not sick, just poor.  She said I should have never told them about the credit card.  She said I should have said I could pay out of my checking account and then they would have helped me.

I  didn’t know the right answers, but the right answers are not the truth.

I know what I would have liked to have said, but I won’t say it here.

Sometimes this world seems harsh. Sometimes, it seems like a hard place to be.

“You can’t maintain.”

For some reason that remark has stuck in my brain.

The thing is, is that I can maintain.  I do maintain and will continue to do so.

 

The Fence Sitter

Fence Sitter for Lady DogKisses aka Michelle. Image by Leslie S. IconDoit, the blog)

Fence Sitter

I wrote to my friend, Leslie Sigal Javorek, trying to describe the images and feelings I have when I consider ways to help my adult son in his healing journey, which has in the past meant navigating the mental healthcare system.

Leslie is a talented artist and author of the blog, IconDoIt, which is how I first came to know her. 

The drawings of the “FenceSitter” surprised me.  I loved them right away. The insight I saw in the image amazed me.  Little details, such as the red velvet fairy-like trousers and the white ruffled shirt reminded me of myself.  

The cute alligator came first and the dogs later.  They were perfect really.  I’ve only played with painting and drawing a few times in my life, so the Fence-Sitter was the first time I had seen my experience and feelings in a tangible form.

The woman I imagined can never decide which side of the fence she should be on.  “She has one leg on each side,” I had written Leslie.  “I’m not sure what is around her or the fence.  She simply can’t decide which road to take or what opinion to have.  She’s always wondering which side has less potential for harm.  Hard choices are on both sides and the fence is starting to hurt.  She needs to be free.  She knows in her heart she will probably never fully stand on either side of the fence.”

I haven’t always been a Fence-Sitter.  In my twenties I had strong opinions and was not afraid to express them, at least to people whom I trusted.  I was reluctant in academic arenas and sometimes in the jobs I held.  I knew what I liked.  I knew what I thought was right or wrong.  I knew what I believed in, but over time, I lost my footing.  Everything changed when my son was diagnosed with a mental illness.

 

“Fence Sitter” Image copyrights belong to Leslie Sigal Javorek.  Visit her here: IconDoIt.

Also, I wanted to share that Leslie has a store on Zazzle where she sells her original art– (IconDoIt, the Store).  Her art is very cool!  Thanks for visiting DogKisses.

Fibromyalgia, family and a funky chicken?

invisible pain and fatigue is a long hard row to hoeWe don’t talk too often and sometimes I simply don’t know how to communicate with my relatives.

I recently received an email from one and the subject line read: ” You must do this!!!”

I think I thought there was some type of national emergency or something.

It was an email asking people to pray for people with cancer and then to forward it on to others.

Well, I thought, who would I send it to?

Most people I email to are really busy.  I feel like I’m asking too much of their time if I send them emails asking them to forward a message, although, now that I think about it, people do that with me for causes they believe in all the time.

I didn’t think much about not sending it on as requested and then I saw a note at the end of the email — 93% won’t forward.

I knew I’d be one of the 93%, which kind of didn’t feel too good.  I felt like I would be in a group of people who didn’t care.

Maybe it was the subject line of the email–You must do this!!! —  along with the three exclamation marks that touched on my one fragile nerve I had left by mid-day.

I realized quickly that the email bothered me.  I was taking it personal, or at least in a way it was not intended, I don’t think.  It had nothing to do with my level of care about people who have cancer, along with their loved ones who are grieving too.  I’m sure I care and I did take a moment to say a prayer.

My mother has survived breast cancer and I’m grateful to modern medicine for this because she had about seven or eight aunts who all had breast cancer.  They were not as fortunate to have the treatment that my mother had.

My father died after a long bout of severe pain from cancer.  My grandmother died two years ago, also in severe pain, with a type of bone cancer.

My beloved Free girl, my canine companion, had to go due to bone cancer in her leg or from all the pain pills, the latter of which made her sick.

My friend Sonny, who passed away one week ago today, had throat cancer.  They were able to remove the tumor but the radiation left his throat too dry to swallow, leading to his having to use a feeding tube, subsequent weight loss and weakness, all of which shortened his life.

I am no stranger to loss as a result of cancer.

I care.  I care about people in general.  I hurt when someone I care about and or love is hurting or sad.

I feel sad for people who are suffering.  People with terminal illnesses.  People living in a war or are watching family members being abused or killed.  I feel sad for people who are starving or sick without access to medical care.

I feel sad for all the broken hearts in the world.

My adult son who has a huge place in the center of my heart has suffered many times and he is a young man.   My heart has broken many times for him and for the other young men and women I’ve met through him who I’ve seen suffer.

I feel sad for the lesser injustices, such as my ten-year old friend who wishes for things, such as an end of the school year celebration, but who graciously accepts that her family doesn’t have enough money to celebrate in a way that  a young person might dream about.

Sometimes I care so much it hurts and I don’t even know how to feel such strong feelings.

I felt selfish by the way I was experiencing the particular email from my sister.  The three exclamation marks felt like — well hell, I don’t know what it felt like, but it wasn’t a nice happy feeling.

Maybe I wish family members would take a small interest in  learning a little about Fibromyalgia and Chronic Fatigue Syndrome.  I wish they were able to understand the seriousness of the illness and acknowledge it.

Sometimes I think they are afraid of acknowledging how serious my illness is because if they did, then they might feel some sort of obligation.

I’ve been what you can safely call sick since 2005.  Many of my symptoms were magnified over the past year.   Two accidents and a narcissist had a strong impact on me, my health, and my life.

If folks don’t believe much in fibromyalgia and think the term Chronic Fatigue Syndrome is nothing more than the way they feel after a long day at work, then it isn’t logical to expect these same people to take the term narcissist very seriously either. 

People who don’t believe you are sick when you are, or who may believe it, only they think it’s because of something else, not what you have been diagnosed with and what you know is true, are not showing respect.

Basically, if you don’t have cancer and haven’t been told you’re dying, or if it isn’t an illness people are familiar with or can see, then I believe many people write it off to being psychological.

When I read the email of what I “must do!!!” — I felt a surge of emotions.

What about me I thought? I am aware, as I think many of us with fibromyalgia are, especially since other people will often remind us, that it is not a terminal illness and for this I am certainly grateful.   Should I be more grateful than a healthy person should be?  Aren’t all us who don’t have a terminal illness grateful for that?

Knowing I don’t have a terminal illness indeed offers me a sense of gratitude and feeling gratitude is a healing experience.

There are plenty of days when I feel like this illness is killing me.  I get scared of the future too.  There are days when I’m so tired, so incredibly fatigued, that I feel like the walking dead.

Brain fog and physical fatigue together, plus pain all over my body, even with strong medication, gets me feeling a bit… depressed.

This illness has taken my career and any confidence I  had about future earning potential.  I can’t do a great deal many things that most people take for granted.

My friend, Rose, who has a health blog, Seeking Equilibrium, is too cool.  I shared with her my feelings and she re-wrote the text in the email asking for prayers for people with fibromyalgia.

I wasn’t brave enough to send the revised email, until I got the same email from a cousin, and then saw that the original one came from my other cousin.  I was struck with courage, opened my email, added some recipients and clicked send.

I doubt very seriously if anyone forwarded an email asking for prayers for people with fibromyalgia.  Maybe, but my gut feeling tells me probably not.

My mother came to visit a week or so ago.  She came to help me out a little.  I know she wished I’d had more free time, but I didn’t.   I told her I was trying hard to finish a project and she understands it was important to me.

My mother wanted to have time with me that I simply didn’t have that week.   She wanted us to have a fire outside, but I did not have the energy at the end of the days.  I too wanted this.  I wanted to sit around the fire and see my mother happy, which would have made me feel happy.

“We didn’t get to spend any time together,” she told me after five days of being here.  “I wanted to go to the thrift shop(s).”

I felt guilty.  First of all we had spent time together.  I told her she would be walking into my life as it goes during the week.  I have many ongoing obligations and people don’t realize how much of my time and energy is spent on fulfilling them.

Then too, going to one thrift shop in a day is my limit and even then I can’t stay long.   I can’t walk around a store for more than a few minutes before pain sets in.

Now, I just say I’m sorry to my mother when she wants to go shopping and I’m too tired.   It’s time like this when I feel like a disappointment.

The disappointment isn’t only about her though.  One of my favorite things to do is thrift shopping.   I miss it too.

In pain, fatigue, sadness, grief and loss, I’ve found a few ways to live my life the best way I can — with the knowledge, tools and abilities that I have in this moment.

I recently decided to try a little harder to actually live my life.  I may only get moments in time, but I’m getting them.  I hope those moments will turn into days and weeks.

I’m finding laughter again, which is excellent medicine.  I heard myself laugh today.  The sound of it lingered in my mind for a minute or so.  I liked it.

I’ve gotten several pictures of my son now, smiling again, which seemed lost to the lens of a camera for a long time.  I’m enjoying music again.   I’ve made some new friends.

dancing like a funky chicken is good medicine

funky chicken

I’ve even learned a new dance that my ten-year old friend and I came up with, “The chicken dance,” she calls it, which is easy because when I do it, she and her sister laugh so hard they quickly fall down on the sofa, so it only lasts a second or two at each go.

I’m still tired though.

Click on image for a little history of the chicken, from IconDoIt, the blog.

Image of Gardenlady by, “The Graphics Fairy”.

All content in this blog, including images and external links are subject to a Creative Commons Attribution-Non Commercial-Share Alike 3.0 United States License.  See my Terms of Use in my sidebar for more information.

Thank you for visiting my blog.

dogkisses.

Related posts from Dogkisses’s blog:

Without the label of fibromyalgia

Fibromyalgia Misunderstood


In memory of a real friend

remembering...

  Suddenly, it sounds like every bird around are each singing at once.  My mind feels empty but my heart is exploding with a deep sadness.  

I learned today that my dear friend passed on this morning. 

I don’t like death.  I just don’t.  I miss people who die.  And now, my dear friend, a man I considered my accidental adopted father, Sonny, has left this earth. 

Sonny was an amazing human being.  I’ve never known anyone who experienced as many losses in one lifetime as Sonny did and adding to that was a will to live like no other I’ve ever seen.  

I watched Sonny carry on after losing three sons, two of whom I knew and loved.  They each passed on at different times in life, the last one, Sonny’s oldest son, passed not too long ago, the loss of which did have a severe impact on my friend Sonny. 

The last time I saw him he said he wished he could come live with me and I wanted him to.  I really did.  Then I could see him I thought.  Even if he died I could be with him.  I considered it wondering if home health would come in.  I would have taken care of him if I had been able.  I would have until his last day. 

I wish it wasn’t so.  I wish I’d gone three days ago, two weeks ago, and I wish I’d done what he said when I talked to him several weeks ago. 

“Sugar, you should call me every day the rest of my life.” 

Sonny knew and so did I. 

I had gone to visit him not long ago,which was the last time I saw Sonny, and was so sad to see him in the shape he was in.  He recognized me though and he knew my son too. 

I took a picture of us with my cell phone and he could barely see it but he laughed and said, “Sugar you look about as bad as I do.”

I laughed too thinking how at least somebody could see my illness. 

Sonny saw my illness and it made him sad.  He missed too the way I was before but he loved me as I was.  Sonny called me when he saw something on television about fibromyalgia, chronic fatigue syndrome or mental illness.  God Sonny loved us! 

He sang me a song not long ago.  I was so sad I couldn’t think and now I can’t remember the name of it.  He sang the words — I’ve always got you on my mind —  his voice was fragile but he still managed to sing to me.  He didn’t care how it sounded.  He told me it was so.  He said I was always on his mind. 

Sonny was at the state hospital with me when my son was very ill and I didn’t know what was wrong.  He was there all the way through it and sat beside of me when the doctors told me words that took me down, literally, and Sonny held me while I cried tears that felt like they came from the bottom of the ocean. 

Sonny was a mechanic and loved old Mustangs.  I was 26 years old when I first pulled my 1966  into the gas station’s parking lot.  The first man I met had the same name as my father and reminded me a bit of him.  My father had passed away shortly before.  Seeing my car the man called out to Sonny.  I couldn’t believe it.  He looked just like my dad only he had gray hair.  He sounded like my dad.  He moved like my dad.  I felt nearly haunted. 

He had a small cigar dangling from the corner of his mouth.  He loved my car and made some pretty common remarks you might hear at a gas station in reference to the looks of the driver, if the driver is female that is.  From that day forward, Sonny became my adopted father.I never  told Sonny certain things my dad had always done for me, such as fixing my car problems and buying my son and I a coat every Christmas.  These were things my dad did for me, no matter what.  My dad didn’t have much money but what he had he handled it well.   Oddly, when I met Sonny and told him how much he was like my dad, he began doing these exact things. 

Now I cry.  I knew Sonny leaving would make me miss my dad more too. 

I don’t like death.  It is too sad.  People leave forever.  

Sonny always told me I changed his life.  He became a bachelor after he met me and he lived happily ever after, calling his ex-wives by numbers.  “Wife number two called today,” or “number three.”  They were always calling and he enjoyed telling folks about how so many women wanted him. 

“I feel like a nineteen year-old in an old man’s body,” he’d say enthusiastically.  

I cry again.  His first wife died, the mother of their sons who have died. 

Sonny carried on.  Sonny always carried on… 

Sonny was a funny man.  He and my mother got along great because of their joke-telling abilities.  The first time my oldest sister met Sonny she cried.  She was very close to our dad and when she saw Sonny’s blue eyes, she cried.  They looked exactly like our dad’s. 

His daughter told me today that he went outside yesterday.  He got dressed.  He wanted to sit in the sun.   He was just like my dad.  Even in the end they wanted to wear nice clothes.  They liked being neat and clean.  They wanted to look handsome.  And they did.  

I was driving home at dusk yesterday.  I felt that feeling of being in between.  Not quite dark but no longer day.  I thought of my dog’s nearby gravesite.  Sonny.  I thought of him right then.  I had been thinking the past few days — call Sonny, no go see him, but I didn’t.  So for that too, I cry.  I wish so much I could have said good-bye. 

Sonny gave me a Subaru once.  The greatest little car I’ve ever had.  Sonny helped my son once and I don’t know what we would have done otherwise. 

Sonny listened when I cried.  He listened when I spoke.  He heard me.  

 He completely loved my son.  He said he saw him the same as his own grandson.  

Sonny always told me I was a good mother.  If I said I felt otherwise, he had a never-ending list of reminders for me of all that he remembered while I was raising my son.  My son was about seven or eight when we met Sonny. 

Sonny was my dear and good friend.

 

Gratitude is Healing

Dogs Know Best

Bye Bye and Hello!

“I like reading blogs about fibromyalgia, Chronic Fatigue and Narcissistic Personality Disorder,” I told my good friend.

He laughed.  He thought I was joking. 

Realizing I was serious, my friend and I started a conversation, which was as healthy as the awesome brunch he had prepared for us. 

My friend is a wonderful cook.  He likes to show off his talents in the kitchen.  I’m always happy when I’m on the receiving end of his pancakes made from scratch or the egg dish he makes when I’m feeling particularly down.

Having a real friend is one blessing in my life that helped me rise above the darkness I found myself in after falling prey to a narcissist’s deviant intentions, lies and games.

My friend has never read a blog, but he sure bought me this little computer I’m writing in mine with.

There weren’t any hidden agendas in the gift.  No power-tripping.  Nothing other than wanting to do something for a friend out of love.  Unconditional love is a wonderful gift.

The relationship I had, with a man who by all means behaved like a text-book narcissist, was toxic to my mind, body and spirit.  He had also given me gifts.  Alas.  Each one came with a price.  I would later learn that everything the man had done or offered, in the name of love and kindness, was all a part of his dark and destructive intentions.

Ending a relationship with a man who suddenly changed, and so drastically that he became unrecognizable, was a shocking and painful experience.  I did end it though, and from that day forward, I am healing.

I’m making new memories.   My spirit is renewed in new acquaintances, but even more by remembering the good friends I have.   Authentic interactions with people is healing my heart and helping me to sort through the confusion that was left.

I can feel a return to myself.

I started writing again.  I’m enjoying simple things like sitting by a fire.  My mental and emotional health is better, but it took a pretty long time for the pain to settle down.  Healing after abuse takes time.

Practicing gratitude has helped me heal.  Every little thing helps when you’re assembling pieces of your self.  Being grateful is said to be a state of mind, and I believe it.

A healthy life after a toxic relationship is possible. 

Aside from practicing gratitude, saying No was crucial for me to get out and stay out.  I had to say NO many times, at first to the man with harmful intentions and finally, to myself each time I doubted the truth.

Say no to a narcissist!

“No” icon via IconDoIt

Thank you for visiting Dogkisses’s blog! 

A dog named Free

A dog who loved the river, resting after a swim.

Free, In her element by the mountain creek.

I was a young mother and at times, when I look back, I think I grew up with my son.  Sometimes I’d get strange ideas.  Like with getting a dog.  I told him if we were supposed to have a dog (as if everything is predetermined, which I don’t believe is so), that one would probably just come to us.  I told him if the opportunity arose before school started, which was only about ten days later, then I’d think about it.

“$25.00” read the sign on the side of the large cardboard  box. 

 I don’t know how my son spotted it since we were across the street eating , but he did.  We were at the Apple Chill festival downtown Chapel Hill, North Carolina. 

“Mom!  Look!”  And he ran.  He ran fast to the other side of the road and then I heard, “Mom, come here and hurry!”  

Approaching the box I had no clue what was inside.  My son had already spoken with the nice woman standing beside of it.  She was smiling.  He leaned down and came out with a small but fat black furry puppy.  It was the ninth day since I’d said what I had and unknowingly to me,  he had counted the days. 

“It’s the ninth day Mom!”  He placed the puppy in my hands and looked into my eyes.  Very quickly he said here let me take that one and he put it back in the box.  “There she is,” he said.  He picked up another puppy, gently placing  her in my hands.  A smile came across his face instantly and right then tears flowed from my eyes.

I didn’t know why.   I felt something deep inside me.  I knew she had come to us.  I knew too that we needed an extra family member.  Two was not enough.  We needed three and there was our third member, curled up in the cup of my hands just like she had fallen from heaven.

“Can we take her home now?” my son asked.  He hadn’t tried to hold her but instead he wanted me to keep holding her.  “You like her don’t you Mom,” he said with great confidence, and I most certainly did.

“I have some cash in my car,” I told the nice woman selling her puppies at the festival.  “I’ll go and get it.” 

My son’s face glowed. The woman’s eyes teared up.  “You don’t have to pay,” she said.  I can tell you guys are going to give her a wonderful home and that means so much to me.  I can tell you both already love her!”

“Here is eight dollars,” I told her, which was all the cash I had on me.  I offered to pay more but she insisted that we not pay anymore.  She thanked me saying this would cover the puppy shots she had paid for.

Free lived with us as our third and necessary extra family member for 12 years, which is not much time in my time, but a bit in hers.

Most people think she was free, but we named her after a horse from Texas.  Free always reminded me of horses.  She grazed in fields of grass as a pastime and almost always never got sick. 

I’m thinking about Free a lot lately.  Free lived every moment to the fullest.  She engaged in life with every fiber of her being, even in the end she still wanted to experience life, mostly the fresh air outside.  

Free passed with as much glory as she had come to us with, leaving her love and teachings with me forever.

I found a note I wrote shortly after she passed on.  I know it is sad to think about our pets who had to leave Earth, but for me, I cannot forget.

I spent three amazing days with Free shortly before she left this earth.  I spent every day with Free during her life,  but those three days were special.  I stayed with her the entire time.  I lied down as close as I could get with her in the corner.   The Thunder beings came, which always scared Free and I held her close.  I stared into her eyes and I told her all that she meant to me.

People think you’re crazy when you say you can communicate with your dog.  I think people who can’t are kind of strange.

Free sure shared a lot with me.   She was my teacher.  Those three days –Free showed me the world from her view.   I could see life from a place of complete forgiveness, peace and a knowing that it is all okay.

I came across this note I’d written in my diary shortly after Free passed on.

She remains an angel.  

A gift from God

I am humbled 

  My face towards the ground, my head hanging low

I reach for the earth,  the roots run deep

I return to the sky,  the trees stand tall

And this is Free

She is everything beautiful.

Pretty flowers grew and beauty appeared in the woods where no other flowers grew. A healing garden in memory of my best friend, a furry four-legged girl.

A Healing Garden, In Memory of Free